Skip to main content

Personal Testimonies

Key to increasing public understanding of epilepsy is hearing from those who have direct lived experience of the condition. Throughout the years, our volunteers and others have took to our social media channels and beyond to share their stories and experiences in an effort to increase understanding and awareness - as well as helping others with epilepsy on their journey with the condition. This section highlights **some** of the testimonies that have been received and note that there are also personal stories within the sub-menus of the campaigns - i.e, under International Epilepsy Day and National Epilepsy Week. If you are interested in sharing your story with us, you can see further information on this by visiting the 'Becoming a media volunteer' section of  our website. 

Rosie speaks about her recent diagnosis of epilepsy and about some of her experiences of living with the condition so far... 


Michael Mulcahy from Cork was diagnosed with epilepsy unexpectantly at the age of 55 but quickly realised the importance of being open about the condition as soon as possible. You can read his story in full by visiting the 'Personal Testimonies' section of our website. 


Mary Maher from Dublin shared a reflective piece with us on her journey with epilepsy from childhood into the present day. You can read the piece in full by visiting the 'Personal Testimonies' section of our website. 


After a period of seizure freedom, Michael McKillop experienced a breakthrough seizure. In this video he talks about the importance of knowing what to do during a seizure....


 Prior to International Epilepsy Day 2022, Colm shared his story about living with epilepsy....


To raise awareness in advance of International Epilepsy Day 2022 , Kate-Ann talked about her experience of epilepsy and promoted the key message of Time, Safe, Stay. 


Aoife spoke about her journey with epilepsy in advance of Purple Day® 2021 .....


Ruth shared her story with epilepsy in advance of International Epilepsy Day 2021 to help raise awareness...


Megan speaks about her journey with epilepsy for International Epilepsy Day 2021...


Emma shares her inspiring story for International Epilepsy Day 2021...