Univesity College Cork student Rachel Atkins is seeking your help with her final year research project. Rachel's project is entitled "Understanding experiences of spatial and social restrictions, due to COVID-19, among young people with physical disabilities".
The past year has been one full of changes and we've got a slightly minor one to announce regarding this year's Purple Day in Ireland.
Instead of March 26th this year, we will be marking Purple Day in Ireland on March 25th. The reason we have moved Purple Day is because this year, the day has fallen on the same day as the Irish Cancer Society's Daffodil Day.
During the summer, our colleagues in SUDEP Action and researchers from the University of Oxford conducted an international survey on the impact COVID-19 is having on people with epilepsy; their families; and their healtcare providers (in terms of delivering services for people with epilepsy). Dr Danny Costello (Cork) and Prof Norman Delanty (Beaumont) are Irish collaborators on this international study.
Our colleagues in the International Bureau for Epilepsy (IBE) have launched a new survey focussing on pregnancy & epilepsy.
The survey is the first of its kind in Europe and through the responses received, the IBE are aiming to understand how well informed women with epilepsy are regarding the risks involved in pregnancy in epilepsy.
We are delighted to announce that we have approved research funding for a new study which will investigate the societal impact for people with epilepsy of losing a driving license. The research will take place at FutureNeuro, led by Prof. Norman Delanty; Consultant Neurologist at Beaumont Hospital and Registrar Dr. Stephen Klaus.
The European Commission has approved the use of a new drug as an add-on therapy for the treatment of Dravet Syndrome in patients 2 years and older.
The Commission’s approval of FINTEPLA (Fenfluramine) will mean that the drug’s manufacturers can now apply to European member states regulatory authorities to make the drug available and/or reimbursed in that country.