Epilepsy Ireland and OACS Ireland have received an invitation from the Minister for Health, Deputy Stephen Donnelly to meet regarding our ongoing campaign surrounding Sodium Valproate (Epilim) next Wednesday.
We have accepted this invitation and welcome the opportunity to discuss the many issues which are facing families impacted by Sodium Valproate which include:
A new report commissioned by our colleagues in Children In Hospital Ireland (CIHI) has highlighted the additional costs families face when they have a sick child or a child with a long term health condition.
As you may have seen on our social media channels and on our website previously, over the long weekend just past, members of our team took part in what we called the 'Great EI Run/Walk/Crawl'.
Our colleagues in the Neurological Alliance of Ireland (NAI) have launched a survey seeking feedback about accessing supports online.
SUDEP Action Day 2020 took place on Friday October 23rd. The day aims to raise awareness of Sudden Unexpected Death in Epilepsy and encourages people with epilepsy to know the risks around SUDEP and what they can do to reduce them.
To mark SUDEP Action Day 2020, Epilepsy Ireland are announcing the results of a survey of over 300 people with epilepsy on awareness of sudden unexpected death in epilepsy (SUDEP) among people with epilepsy and about communications between them and their healthcare team about SUDEP.
For #SUDEPActionDay2020, Lucy Dineen shared with us how her family have been impacted by SUDEP....
Epilepsy Ireland are delighted to be a featured charity as part of the 'Gift Back' appeal - a new initative launched by Marketing Network Group.