Dravet Syndrome Awareness Day 2025
June 23rd is Dravet Syndrome Awareness Day.
June 23rd is Dravet Syndrome Awareness Day.
We've begun planning for International Epilepsy Day 2026 and would like your feedback!
We have commenced the hiring process for the newly created position of Partnerships & Philanthropy Officer.
We are delighted to have published a new resource for parents living with epilepsy to help explain the condition to their toddlers or young children. The resource has been written by a parent living with epilepsy and one of our media volunteers, Nicole McCarthy.
Nicole was diagnosed with epilepsy in 2016 and when her daughter Amelia was two years old, Nicole realised that it was difficult to speak to her about what was happening to her when she had a seizure.
We've launched a fun new module on our e-learning platform EpiLearn - that can see you get a "degree" in minutes!
Congratulations to Professor David Henshall, who has been named as a recipient of the Ambassador for Epilepsy award by the International League Against Epilepsy.
With this week being #EpilepsyWeek, it is a perfect opportunity to let us know what types of research we should be supporting.
In a new paper recently published in the medical journal, Epilepsia, the International League Against Epilepsy have published new terminology for the classification of seizures to be used going forward.
The last update to seizure classification terminology came in 2017 and in this latest update, there are now four main seizures classes and 21 seizure types – this is down from the 63 seizure types that were listed in the 2017 version.
Epilepsy Ireland are delighted to confirm that we have recently begun recruiting for the newly created role of Research Officer within our organisation.
As an organisation that has invested over €1.5 million in a range of epilepsy research projects since 2009, the creation of this new role reiterates our commitment to epilepsy research in Ireland.
We were delighted to recently have our Triple Lock standard renewed - marking the 8th year we have held the standard.