As part of the continuing efforts to reduce the risks associated with the anti-seizure medication, Sodium Valproate (Epilim), the Health Products Regulatory Authority (HPRA) have recently reissued patient information materials and reminders to prescribers and pharmacists about their obligations under the Pregnancy Prevention Programme (PPP) and risk reduction measures associated with the medication.
We are delighted to share the news that the My Moving Brain series which has been led by our colleagues in FutureNeuro, has been shortlisted for a Chambers Ireland Sustainable Business Impact Award.
We have commenced the hiring process for the position of Communications Officer.
Working with our Advocacy & Communications Manager, this position will directly contribute to the advancement of our Strategic Plan, with a particular focus on the key aim of increasing the visibility of epilepsy and Epilepsy Ireland.
Can you help researchers from the University of Galway by sharing your experience?
Researchers from Maynooth University are inviting adults in Ireland with epilepsy to take part in a new study exploring the timing and storage of daily anti-seizure medication (ASMs). The study, called TimeAlign, is investigating whether the time of day and the regularity that people with epilepsy take their medication affects their seizure control.
We are looking forward to meeting with the Department of Health over the coming weeks to discuss one of our key advocacy campaigns.
June 23rd is Dravet Syndrome Awareness Day.
We've begun planning for International Epilepsy Day 2026 and would like your feedback!
We have commenced the hiring process for the newly created position of Partnerships & Philanthropy Officer.
We are delighted to have published a new resource for parents living with epilepsy to help explain the condition to their toddlers or young children. The resource has been written by a parent living with epilepsy and one of our media volunteers, Nicole McCarthy.
Nicole was diagnosed with epilepsy in 2016 and when her daughter Amelia was two years old, Nicole realised that it was difficult to speak to her about what was happening to her when she had a seizure.