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Rivotril - Further shortage

Last Updated: Mon, 24/10/2022 - 17:35

Epilepsy Ireland has been notified by the Health Products Regulatory Authority (HPRA) that further issues are expected with the supply of the Anti-Seizure medication, Rivotril (Clonazepam).

In September, manufacturing issues created a shortage of the medication and led to difficulties for many patients in having their prescriptions filled. Although supply had returned to normal in recent weeks, it now appears that further shortages are likely.

Epilepsy Ireland National Conference recordings now available.

Last Updated: Thu, 20/10/2022 - 14:47

We were delighted to recently host our National Conference in the Ashling Hotel on September 24th. For the first time in two years, the in-person element of the conference returned, and it was a pleasure to welcome Epilepsy Ireland members, volunteers & supporters to our conference.

The conference was also streamed online and for those that joined us online on the morning, you’ll be all too aware that we had a few gremlins interfering with our audio output.

Notice on Anti-Seizure Medication Vimpat (Lacosamide)

Last Updated: Fri, 14/10/2022 - 11:09

Epilepsy Ireland have been contacted by UCB, manufacturers of the Anti-Seizure Medication Vimpat (Lacosamide), informing us that their patent exclusivity for the medication has now expired.

This means that other pharmaceutical manufacturers can bring forward generic versions of this medication to be marketed in Ireland.

NCPE issue positive recommendation on reimbursement of Cenobamate (Ontozry®)

Last Updated: Thu, 13/10/2022 - 15:50

The National Centre for Pharmacoeconomics (NCPE) have updated Epilepsy Ireland that they have issued a positive recommendation regarding the potential reimbursement of the anti-seizure medication, Cenobamate.

The medication has been indicated for use in adults living with focal-onset seizures and has posted positive clinical trial results. Epilepsy Ireland made a submission to the NCPE in July supporting reimbursement of the medication.

Epilepsy Ireland AGM 2022

Last Updated: Fri, 07/10/2022 - 16:46

The Annual General Meeting of Brainwave, The Irish Epilepsy Association (trading as Epilepsy Ireland) for the year ending 31.12.21 was held on the 29th September 2022 via zoom.

New epilepsy focussed exhibition to be unveiled at Irish Museum of Modern Art

Last Updated: Wed, 05/10/2022 - 11:10

A new exhibition in the Irish Museum of Modern Art that combines a lived experience of epilepsy; cutting edge science; and music is set to be unveiled this weekend.

At the centre of this exhibition is Debbie Boss. Debbie was diagnosed with a brain tumour in 2014. Although Debbie’s surgery to remove the tumour was successful, she subsequently developed epilepsy. The condition has had a considerable impact on Debbie’s day to day life ever since.