As part of the lead up to #EpilepsyDay, we commissioned a survey of 1,000 members of the general public on their understanding, knowledge & attitudes towards epilepsy.
The survey was conducted online between the 13th - 17th January and received a full compliment of 1,000 responses.
The key findings of our survey are as follows:
A new review published in the UK has investigated the use of several common anti-epilepsy drugs (AEDs) during pregnancy.
We are delighted to have been listed as a local patient partner in the development of a National Public & Patient Involvement (PPI) Network.
A new study recently featured in medical journal, The Lancet Neurology, has reported that seizure activity for people with focal epilepsy could be predicted up to day or more in advance of a seizure.
In their latest meeting, members of Louth County Council passed a motion supporting the issue of Free Travel for People with Epilepsy and for Reasonable Accommodations for students with epilepsy who may have a seizure during state examinations.
Updated: 2nd February 2021
The Minister for Health, Deputy Stephen Donnelly has announced that the Medicinal Cannabis Access Programme (MCAP) has been added to the HSE Service Plan for 2021, a move that will enable the funding and delivery of the MCAP this year. The MCAP was established through legislation passed in 2019 but has not been made operational as yet.
The Epilepsy Patient Portal has once again been featured in a leading medical journal, Epilepsy & Behaviour.
The European Patients Forum will be hosting a virtual event on the development of COVID-19 vaccines next week.
The Union of Students in Ireland and AHEAD Ireland are encouraging students with a disability or long-term health condition to attend their two-day online conference on the "Power of Disability". The conference is set to take place this coming Thursday and Friday.
With Ireland back in lockdown – and with it looking likely that we face a difficult few months ahead – we need to keep our minds busy while staying safe.