A new report commissioned by our colleagues in Children In Hospital Ireland (CIHI) has highlighted the additional costs families face when they have a sick child or a child with a long term health condition.
As you may have seen on our social media channels and on our website previously, over the long weekend just past, members of our team took part in what we called the 'Great EI Run/Walk/Crawl'.
Our colleagues in the Neurological Alliance of Ireland (NAI) have launched a survey seeking feedback about accessing supports online.
SUDEP Action Day 2020 took place on Friday October 23rd. The day aims to raise awareness of Sudden Unexpected Death in Epilepsy and encourages people with epilepsy to know the risks around SUDEP and what they can do to reduce them.
To mark SUDEP Action Day 2020, Epilepsy Ireland are announcing the results of a survey of over 300 people with epilepsy on awareness of sudden unexpected death in epilepsy (SUDEP) among people with epilepsy and about communications between them and their healthcare team about SUDEP.
For #SUDEPActionDay2020, Lucy Dineen shared with us how her family have been impacted by SUDEP....
Epilepsy Ireland are delighted to be a featured charity as part of the 'Gift Back' appeal - a new initative launched by Marketing Network Group.
The Department of Social Protection and Employment Affairs have commissioned a survey seeking feedback from people living with a disability to investigate the cost of living with a disability in Ireland.
While the questions will not be applicable to all people with epilepsy, it is important to have insight from those who may be living with potentially uncontrolled epilepsy or parents and/or carers of people with uncontrolled epilepsy who have additional needs.