Epilepsy Ireland is embarking on an exciting new process to develop our Strategic Plan for the next 5 years – and we need your help!
2021 marks the final year of our current Strategic Plan which was launched in 2017.
We were recently delighted to be joined by Dr. Bláthnaid McCoy for a webinar on the issue of drug resistant/treatment refractory epilepsy.
The webinar focussed primarily on CBD which is of huge interest to many parents caring for a child with drug resistant epilepsy and indeed, of interest to the wider epilepsy community.
At the most recent meeting of Kerry County Council, local councillors supported a motion on our ongoing campaign surrounding access to Free Travel for people with epilepsy and the issue of reasonable accommodations for students with epilepsy during state exams.
Today is Dravet Syndrome Awareness Day.
While epilepsy itself is not rare, there are forms of rare epilepsies. One form of these rare epilepsies is Dravet Syndrome - a severe and refractory epilepsy which begins in infancy. It is characterised by frequent and prolonged seizures and alongside this, those living the condition can face a range of vast and difficult challenges.
Due to essential maintenance, the payment facility on our website is temporarily unavailable on our website. We will unfortunately be unable to accept donations or process shop orders during this period. We apologise for any incovenience caused and will amend this article when we are back up and running.
In the Dáil last week, Deputy Rose Conway-Walsh raised the ongoing delays surrounding details of the promised inquiry into the historical licensing and prescribing of Sodium Valproate (Epilim) in Ireland.
With the Dublin Bay South bye-election officially set for July 8th, Epilepsy Ireland have contacted the candidates from each of the main political parties asking that they outline their support for addressing a number of key issues that are impacting on people with epilepsy within the constituency and indeed, across the country.
A new study recently published in leading epilepsy medical journal, Epilepsia, has reported positive findings on the long-term efficacy of CBD in refractory epilepsies.
The study investigated the use of CBD-based medication Epidyolex in 54 patients with refractory epilepsy in a US hospital over a period of up to 5 years.
At yesterday's meeting of Meath County Council, local councillors supported a motion on our ongoing campaign surrounding access to Free Travel for people with epilepsy and the issue of reasonable accommodations for students with epilepsy during state exams.
The motion was brought forward by Cllr. Noel French and received unanimous support.
Earlier today in Seanad Éireann, Senator Erin McGreehan raised the issue around access to free travel for people with epilepsy.
This is a longstanding issue facing many people with epilepsy accross Ireland and something we focussed on during National Epilepsy Week.
You can watch Senator McGreehan's contribution below: