Purple Day - Can you help?
Monday, January 13, 2020Although International Epilepsy Day is just around the corner, there is another huge day for epilepsy awareness also on the horizon in the form of Purple Day and once again, we need YOU!
News
International study finds that three drugs equally effective in treatment of Statis Epilepticus
Wednesday, January 8, 2020A major new study recently published in the New England Journal of Medicine has stated that levetiracetam (Keppra), fosphenytoin (Pro-Epanutin) and valproate (Epilim) are equally effective in the treatment of Status Epilepticus.
The international study featured collaboration between a number of institutions in the UK & the US and sought to establish whether the drugs stated above are effective in the treatment of Status Epilepticus.
Mothers should continue to breastfeed despite being on epilepsy medication - new study finds
Wednesday, January 8, 2020A new study undertaken by a number of institutions in the United States and recently published in the journal, JAMA Neurology , has recommended that mothers with epilepsy continue to breastfeed as normal despite being on epilepsy medication.
RNS Device could be used to treat conditions associated with Epilepsy
Wednesday, January 8, 2020A recent study from the University of Alabama in the USA published in the medical journal, Epilepsy & Behaviour has looked at the use of the Responsive Neurostimulator System (RNS) in the treatment of conditions associated with epilepsy.
Research Request - Awesme Study seeking Participants & Interviewees
Tuesday, January 7, 2020Epilepsy Ireland have received a request from DCU PHD student ,Orla Mooney seeking participants for the Awesme Study - Adolesecents With Epilepsy Self Management Experiences. Orla has outlined the goals of the study below and what is involved for potential participants.
We receive research requests and those that are looking for volunteers can be found in the research section of our website.
Peaks 2020 - book your place now!
Monday, January 6, 2020Epilepsy Ireland can officially confirm that the Peaks Challenge 2020 will take place on the weekend of the 4th July.
The annual challenge see’s participants put their bodies to the test by taking on the four Peaks of Tonelagee, Lugnaquillia, Luggala & the Blackstairs Mountains.
The Peaks costs €575 per person however deposits are now being taken for an early bird rate of €525, which will only apply until January 15th.
Gabitril - Supply Issues Resolved
Monday, January 6, 2020Further to our recent news items towards the tail-end of 2019 regarding the supply of Gabitril 5mg, 10mg & 15mg, we can confirm that the supply issues experienced have now been resolved following further communication from the drug's manufacturer TEVA.
Furthermore, the HPRA have confirmed that delivery received should be enough to meet patient demand for all of 2020 and therefore no further supply issues are envisaged for the upcoming year.
SláinteCare Integration Fund
Monday, January 6, 2020We are delighted that Epilepsy Ireland’s proposal was one of the 122 projects from around the country to receive funding under the SláinteCare Integration Fund.
The Fund was established to support innovative projects led by hospitals, primary care centres and patient organisations that have the potential to improve citizen engagement in their own healthcare or that can encourage a shift in care from the hospital to the community.
Christmas Message from Epilepsy Ireland CEO, Peter Murphy
Tuesday, December 17, 2019As 2019 draws to a close, it allows for a period of reflection on the work of our organisation over the past 12 months. We are immensely proud to have been a continuous pillar of support to people with epilepsy and their families over the year and we look forward to continuing our work in 2020.
Christmas Closing Dates
Tuesday, December 17, 2019Please note that our HQ will be closed for the Christmas Holidays (Early Close of Business) on December 23rd and will re open January 2nd 9am.
Please contact your local epilepsy nurse specialist or medical team should any issue arise during the holiday period.
Happy Christmas to all our members, supporters & volunteers and every best wish for 2020! Thank you for your continuous support throughout 2019.