A new report commissioned by our colleagues in Children In Hospital Ireland (CIHI) has highlighted the additional costs families face when they have a sick child or a child with a long term health condition.
SUDEP Action Day 2020 took place on Friday October 23rd. The day aims to raise awareness of Sudden Unexpected Death in Epilepsy and encourages people with epilepsy to know the risks around SUDEP and what they can do to reduce them.
For #SUDEPActionDay2020, Lucy Dineen shared with us how her family have been impacted by SUDEP....
The Department of Social Protection and Employment Affairs have commissioned a survey seeking feedback from people living with a disability to investigate the cost of living with a disability in Ireland.
While the questions will not be applicable to all people with epilepsy, it is important to have insight from those who may be living with potentially uncontrolled epilepsy or parents and/or carers of people with uncontrolled epilepsy who have additional needs.