The HSE are seeking feedback from young people with long-term health conditions and/or their parents/guardians about their experiences of transitioning from paediatric to adult services.
The Department of Health are seeking to appoint a Chairperson of the long-awaited Sodium Valproate inquiry via the Public Appointments Service.
Our colleagues in the HRCI have launched their General Election Manifesto. Find out more about their calls.
In the Dáil recently, the upcoming changes to the Free Travel scheme were discussed.
As a result of a longstanding campaign by Epilepsy Ireland, from July, people who are medically unfit to drive for at least a year will be able to apply for the benefit. The changes being made will remove the barrier of having to be on a qualifying payment in order to access Free Travel.
We're looking forward to beginning work on a new project with our colleagues in FutureNeuro and the Neurological Alliance of Ireland!
Please support our biggest fundraising day of the year!
We were pleased to recently have our Triple Lock status renewed - find out more about what 'Triple Lock' means.
Please support the new Patients Deserve Better campaign.
We want YOUR feedback on our future advocacy priorities - take our survey now!
The HSE’s National Genetics and Genomics Office has partnered with Amárach Research to carry out a communications research project aimed at better understanding what patients who are referred to genetic and genomic services, and their families, need to know to help them better navigate services.
The knowledge gained will be used to work towards an improved patient experience of using genetic and genomic services.