We are just one week from our second major epilepsy awareness day of the year - Purple Day®!
Purple Day® takes place in Ireland this year on March 25th and we are appealing for your support! You can get involved in a number of ways:
The National Centre for Pharmacoeconomics (NCPE) have issued their recommendation to the HSE regarding the reimbursement of Epidyolex.
Epidyolex is a cannabidiol (CBD) medication which through clinical trials has been shown to have a positive impact in the treatment of two rare epilepsies – namely Lennox Gastaut Syndrome & Dravet Syndrome.
The Midlands offices of Epilepsy Ireland, the Migraine Association of Ireland, Acquired Brain Injury Ireland and the Multiple Sclerosis Society of Ireland have announced details of a week-long series of seminars to support people who are living with neurological conditions, their families, friends and carers.
Over the coming weeks, we will be arranging a video question and answer session with Dr. Bláthnaid McCoy.
Dr. McCoy is a pediatric neurologist at the Beacon Hospital & the Blackrock Clinic; and is an international expert in the management of complex epilepsies and is a wealth of knowledge on emerging treatments in these epilepsies.
Univesity College Cork student Rachel Atkins is seeking your help with her final year research project. Rachel's project is entitled "Understanding experiences of spatial and social restrictions, due to COVID-19, among young people with physical disabilities".
The past year has been one full of changes and we've got a slightly minor one to announce regarding this year's Purple Day® in Ireland.
Instead of March 26th this year, we will be marking Purple Day® in Ireland on March 25th. The reason we have moved Purple Day® is because this year, the day has fallen on the same day as the Irish Cancer Society's Daffodil Day.
During the summer, our colleagues in SUDEP Action and researchers from the University of Oxford conducted an international survey on the impact COVID-19 is having on people with epilepsy; their families; and their healtcare providers (in terms of delivering services for people with epilepsy). Dr Danny Costello (Cork) and Prof Norman Delanty (Beaumont) are Irish collaborators on this international study.