Cruella - Photosensitive Epilepsy Warning

We would like to make those with photosensitive epilepsy aware that new Disney film, Cruella contains potentially triggering content for those living with the condition. 

Those with photosensitive epilepsy can have seizures as a result of an exposure to intense light or visual lighting pattern.  Approximately 3-5% of the wider epilepsy community experience seizures due to photosensitivity.

Epilepsy Ireland present to Oireachtas Committee on Online Safety & Media Regulation Bill.

During National Epilepsy Week, we highlighted an issue which we would we like to see addressed under the proposed Online Safety & Media Regulation Bill - namely that the bill would contain a reference to content maliciously shared to induce a seizure in a person with photosensitive epilepsy.

Epilepsy Ireland to address Oireachtas Committee on Media regarding Online Safety & Media Regulation Bill

We are delighted to provide an update to our members and supporters regarding our ongoing advocacy campaign for #EpilepsyWeek. Today we have been raising awareness of the need for the proposed Online Safety & Media Regulation Bill to contain a reference to potentially harmful online content which - in itself - is designed to cause harm. You can read more on that HERE. 

#EpilepsyWeek Day 5 - Online Safety & Media Regulation Bill

The final issue we raise as part of #EpilepsyWeek is concerning an upcoming piece of legislation called the Online Safety & Media Regulation Bill. 

The bill aims to protect our citizens from harmful content online which is very welcome however - we believe that a specific reference could be made in the legislation to help protect people with photosensitive epilepsy online and to ensure that a particularly disgusting form of online trolling will be a criminal offence in Ireland.

#EpilepsyWeek Day 3 - Reasonable Accommodations for Students with Epilepsy

Today as part of #EpilepsyWeek, we are highlighting an issue which specifically impacts on our young people with epilepsy who are sitting their Leaving Certificate. 

Currently, if a student with epilepsy has a seizure during their exam and are unable to complete their exam as a result, there is no provision to resit this exam within the same cycle. Instead, students with epilepsy will have to wait a year until the next cycle to retake their exam.