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'Patients Deserve Better' to brief TDs & Senators this week.

Last Updated: Mon, 13/06/2022 - 11:45

The Patients Deserve Better campaign is set to brief TDs and Senators in Dáil Eireann this week to press the need for investment in Ireland’s neurology nurse specialist capacity.

The campaign has been running since last year and is being coordinated by our colleagues in the Neurological Alliance of Ireland.

Ireland currently has a shortfall of 100 neurology nurses and the campaign is seeking to press Government and policymakers to address this shortfall.

Sodium Valproate Inquiry Update.

Last Updated: Wed, 08/06/2022 - 07:43

Epilepsy Ireland and OACS Ireland met with Department of Health officials yesterday to discuss the establishment of the long-awaited Sodium Valproate inquiry.

There was an open and honest discussion about the delays in establishing the inquiry to date and OACS Ireland conveyed the frustration families are feeling as a result.

June is Cavernoma Awareness Month!

Last Updated: Tue, 07/06/2022 - 08:40

This month is Cavernoma Awareness Month.

Cavernoma is a rare condition and a Cavernoma is made up of abnormal blood vessels that looks like a raspberry. Cavernoma present in the brain and/or spinal cord. 

There are a number of serious symptoms that can result from a Cavernoma, including seizures, strokes and haemorrhages. It is estimated that 1 in every 400,000 people are diagnosed with this rare condition every year. 

Sodium Valproate Inquiry Update.

Last Updated: Fri, 03/06/2022 - 16:52

Alongside our colleagues in OACS Ireland, we will be meeting with the Minister for Health this week to discuss the establishment of the long-awaited Sodium Valproate inquiry.

New series of Mid-Morning Mindfulness announced!

Last Updated: Tue, 31/05/2022 - 13:11

At the beginning of the year, we trialled a new online event on mindfulness for people with epilepsy and family members of a person with epilepsy. The online event is led by our Community Resource Officer, Cliona Molloy.

National Epilepsy Week - #EpilepsyTogether

Last Updated: Wed, 25/05/2022 - 15:54

This week is National Epilepsy Week and working with our colleagues in the UK, we have been exploring the overall theme of #EpilepsyTogether.

Across social media, we have been sharing personal testimonies from people living with epilepsy – sharing their experiences and showing how help, support and understanding from others can be crucial in living with the condition.

The PENNI Research Team wants to hear from you!

Last Updated: Mon, 23/05/2022 - 09:46

Following on from a recent survey regarding the outcomes of childhood epilepsy, the PENNI research team from the University School of Neuropsychology are seeking to further their research by interviewing people who developed epilepsy during childhood.