May 18th – May 24th marks National Epilepsy Week and sees a number of epilepsy organisations from the UK & Ireland come together to raise awareness of the condition.
As the only representative patient organisation for people with epilepsy and their families in Ireland, we are proud to be taking part in the week alongside our colleagues in the UK.
The International League Against Epilepsy have launched a survey regarding the impact of COVID19 on people with epilepsy.
Recently we featured a series of videos from Daniel Flynn - Principal Psychology Manager of the Cork/Kerry mental health services - with tips to manage emotions & mental wellbeing during the COVID19 situation. You can see those here.
With the cancellation of our annual Cork Flag Day due to COVID19, we've decided to hold a national flag themed event instead!!
In the latest edition of their Drug Safety Newsletter, the Health Products Regulatory Authority (HPRA) have reminded heathcare professionals on their roles & responsibilities when it comes to prescribing & dispensing the epilepsy drug sodium valproate (epilim).
A new series of Stress Control online sessions are set to begin on Monday, May 11th. These are undoubtably stressful times and for many people with epilepsy, stress can lead to increased seizures so it's important to do what you can to help manage your stress in the current environment.
The sessions will be led by Dr Jim White, consultant clinical psychologist and will be broadcast on youtube live. The timetable for the classes and what is covered is contained in the image below:
During COVID19 our staff and Community Resource Officers are continuing our work from home towards a society where no person's life is limited by epilepsy. There have been some slight changes to the operating times of our Head Office number – 014557500 during this time. Please see these below:
A new study has suggested that repeat epilepsy surgery aimed at gaining seizure control is likely to be less successful.
The Cleveland Clinic Epilepsy Center in the United States wanted to investigate whether outcomes are improved or not if surgery is attempted again in cases where a person’s first surgery was not deemed a success. The study was the largest to date to investigate this matter.
Unfortunately with the ongoing situation surrounding COVID19, our events for our annual Cork Flag Day on the 5th & 6th May have been cancelled.
In years past, this was a major fundraising day for our organisation in the Rebel County but we must ensure the safety of our volunteers in the current situation.