News

AsIam seeking feedback from adults with autism - can you help?

Our colleagues in AsIam – one of Ireland’s leading Autism charities – are seeking feedback from adults on the autism spectrum about a new programme they are hoping to launch.

The proposed programme aims to combat social isolation in autistic adults and AsIam are keen to receive feedback from as many people as possible to gain valuable insights on the challenges faced by autistic adults.

Research Request - Can you help David with his study on sleep-deprived EEGs?

National College of Art & Design Masters student David Greene needs your help!

David’s masters project is focussing on preparing patients and parents for attending EEGs.

EEGs are something that many people with epilepsy and their families will be familiar with and are a key part of the diagnostic process for epilepsy for many clinicians.

Specifically, David is seeking feedback from parents of children with epilepsy about their experiences of a sleep deprived EEG.

Epilepsy Treatment Booklet Updated

We have updated our booklet on Epilepsy Treatment. 

We have a number of publications which are kept under constant review and amended as further insights and information becomes available. The Epilepsy Treatment booklet offer comprehensive information on a number of currently available epilepsy treatments including Anti-Epileptic Drugs; surgey and the keto diet - amongst much more. 

#WorldBrainDay - NAI launch report on Embracing Digital Solutions for Neurological Care

To mark World Brain Day today, our colleagues in the Neurological Alliance of Ireland (NAI) have launched a report on online service provision since COVID-19.

The report is entitled "Looking Beyond COVID-19: Embracing Digital Solutions for Neurological Care" and documents how neurological services - in terms of both healthcare professionals and patient organisations has adapted since the onset of the pandemic. 

Staying safe in the sun!

It certainly appears that Summer is here which is great to see after what has been a difficult first half of the year for so many. However, with Met Éireann issuing a yellow warning for high temperatures for the rest of the week, we wanted to remind people with epilepsy and their families of a few tips to bear in mind during this period of wonderful weather. Extremes of heat can trigger seizures in for some people with epilepsy so these bear these tips in mind while enjoying the sunshine!

Monaghan County Council pass motion supporting key Epilepsy Ireland advocacy matters.

At the most recent meeting of Monaghan County Council, local councillors supported a motion on our ongoing campaign surrounding access to Free Travel for people with epilepsy and the issue of reasonable accommodations for students with epilepsy during state exams. 

The motion was brought forward by Cllr. Richard Truelle and received unanimous support.