Epilepsy Ireland to fund new study focused on issue of Free Travel

We are delighted to announce that we have approved research funding for a new study which will investigate the societal impact for people with epilepsy of losing a driving license. The research will take place at FutureNeuro, led by Prof. Norman Delanty; Consultant Neurologist at Beaumont Hospital and Registrar Dr. Stephen Klaus.

FINTEPLA (Fenfluramine) approved by EU Commission for use in Dravet Syndrome

The European Commission has approved the use of a new drug as an add-on therapy for the treatment of Dravet Syndrome in patients 2 years and older.

The Commission’s approval of FINTEPLA (Fenfluramine) will mean that the drug’s manufacturers can now apply to European member states regulatory authorities to make the drug available and/or reimbursed  in that country.

#EpilepsyDay - Epilepsy Ireland release key findings from survey of General Public.

As part of the lead up to #EpilepsyDay, we commissioned a survey of 1,000 members of the general public on their understanding, knowledge & attitudes towards epilepsy.

The survey was conducted online between the 13th - 17th January and received a full compliment of 1,000 responses. 

The key findings of our survey are as follows: