National Epilepsy Week 2021

National Epilepsy Week takes place next week and for the week, we will be highlighting key advocacy issues which are facing people with epilepsy and their families. 

Epilepsy Ireland have been in contact with TD's and Senators highlighting some of these issues and asking that they #AdvocateForEpilepsy. The issues we have identified are as follows:

Research Request - NUIG student seeking responses to survey on disclosure

NUIG Health Psychology postgraduate student Caoimhe O'Sullivan is seeking feedback from people with epilepsy as part of her study focussing on disclosure of a non-visible health condition.

Epilepsy is an invisible condition for many and Caoimhe's study will be aiming to quantify how the disclosure of a condition can impact on a person's wider health & well-being.

Dún Laoghaire-Rathdown County Council pass motion supporting key Epilepsy Ireland advocacy matters.

At the most recent meeting of Dún Laoghaire-Rathdown County Council, local councillors supported a motion on the issue of Free Travel for people with epilepsy and the issue of reasonable accommodations for students during state exams.

The motion was brought forward by Cllr. Séafra Ó Faoláin with the motion receiving unanimous support.

UCD Study seeking feedback from parents of children with Special Educational Needs

Researchers from the UCD School of Education are seeking feedback from parents of children & adolescents with special or additional educational needs. 

The study is investigating the participation of children with additional needs in their communities. It can be common for children with epilepsy to have additional needs and therefore this research may be of interest to many parents of children with epilepsy.