It has been confirmed that the death of Disney actor Cameron Boyce in July was a result of Sudden Unexpected Death in Epilepsy (SUDEP).
The cause of death was confirmed by the Los Angeles County Coroner last week. The actor, aged 20, had amassed thousands of fans from his roles in Descendants and Jessie.
A shortage of Gabitril (5, 10 & 15mg) film coated tablets has been confirmed by the Health Products Regulation Authority with manufacturing delays cited as the reason for the shortage.
The HPRA have stated that the expected return date of normal supply is October 2019.
Epilepsy Ireland would like to express our sincere gratitude to everyone who took the time to complete our recent survey on “Priorities for Epilepsy Research.”
Today is World Brain Day 2019. This day highlights the need for Neurological care to be made a priority in Ireland and across the globe. You can show your support for the goals of the day by using the hashtag #WorldBrainDay on social media and by sharing your own goals through the hashtag #BrainLifeGoals.
Following on from Epilepsy Ireland's recent appearance before the Oireachtas Health Committee alongside our colleagues in the Disability Federation of Ireland and The Wheel, the full transcript and video from the committee is now available to view online.
On Monday 29th July, our Head Office in Crumlin will be closed due to essential building maintenance. Works are expected to be completed by the 13th August.
However it will be business as usual for this period as Head Office staff will be working from the Terenure Enterprise Centre and you can continue to call us on 014557500, by emailing firstname.lastname@example.org or by contacting us through our social media channels.
Thank you to all the families who joined us for our annual family fun day at Dublin Zoo on Saturday.
We hope that you enjoyed the day as much as we enjoyed welcoming you there.
Giraffes were-no pun intended- head and shoulders above everything else when it came to the main attractions for the children in attendance on the day.
The Oireachtas Committee on Health has agreed to contact the Minister for Disabilities, Finian McGrath, regarding access to free travel for persons with Epilepsy who are ineligible to hold a driver’s licence on account of their condition.
The committee had been hearing evidence from Epilepsy Ireland on Wednesday, our colleagues in the Disability Federation of Ireland and The Wheel about challenges in the non-profit sector when the matter of access to free travel was raised.
The Neurological Alliance of Ireland and the European Federation of Neurological Associations are coming together on World Brain Day, Monday July 22nd to focus on advocacy in Ireland and Europe on behalf of people with neurological conditions.
Book your place now at https://www.eventbrite.ie/e/world-brain-day-2019-tickets-64360448835