One of our key objectives at Epilepsy Ireland is "to undertake, encourage, fund and communicate research into the causes of, cures for and management of epilepsy and into the social and psychological effects of the condition".
Sudden unexpected death in epilepsy (SUDEP) is rare. About one in 1,000 people with epilepsy die from SUDEP per year.
A new study published in the online issue of the journal Neurology last week has provided much needed information on the circumstances of SUDEP and has shed new light on risk factors for SUDEP.
The Minister for Health Simon Harris TD has signed legislation which will allow for the operation of the Medical Cannabis Access Programme.
The Programme will allow for access to cannabis-based products for medical use in line with the legislation.
Epilepsy affects nearly 50 million people of all ages around the world. A new report published by the World Health Organisation, “Epilepsy, a public health imperative” presents a comprehensive picture of the impact of the condition on people with epilepsy, their families and communities.
A new Swedish study published last week in the British Medical Journal has found that treatment with gabapentinoids - a group of drugs used for epilepsy and other conditions - is associated with a number of harms including an increased risk of suicidal behaviour, unintentional overdose, injuries, and road traffic incidents.
Researchers from the French National Health Insurance (CNAM) have just published a nationwide study of pregnancies ending between January 2011 and March 2015 to examine links between exposure to monotherapy with 10 different AEDs during the first two months of pregnancy and the risk of 23 specific major congenital malformations (MCMs). The study is published in the journal Neurology.
A Dutch research team have warned that strobe lighting at electronic dance music (EDM) festivals can raise the risk of epileptic seizures.
The study, published this week in the BMJ Open, examined 28 EDM festivals in Holland during 2015 for the rates of seizures linked to exposure to strobe lighting. The rates of seizures were more than three times higher for night-time events (30) than for daytime events (9).
Epilepsy Ireland has become aware that there have been changes to the Long Term Illness Scheme recently in respect of the application process for new applicants and for renewal applicants also.
These changes include the following: