At the December meeting of the Board of Epilepsy Ireland, Cathy Grieve was elected as the new Chairperson of our charity.
New data regarding the use of Epidyolex (Cannabiniol) in the treatment of the rare condition tuberous sclerosis complex (TSC) has pointed to the use of the product having a positive impact in seizure frequency for the patients included in the trial.
The findings of the study were presented recently at the annual meeting of the American Epilepsy Society.
Epilepsy Ireland along with our colleagues in OACS Ireland have launched a survey of women and girls in Ireland who are taking (or who were recently taking) the epilepsy medication sodium valproate (Epilim).
Further to our most recent news update regarding Disney issuing a warning to those with photosensitive epilepsy in relation to the latest instalment in the Star Wars franchise, the Irish Film Classification Office have responded to Epilepsy Ireland's query regarding their plans in this regard.
In a statement released to our colleagues in the Epilepsy Foundation of America, Disney has warned that the upcoming edition of the Star Wars franchise, The Rise of Skywalker, may affect those with photosensitive epilepsy.
Epilepsy Ireland would like to express our sincere condolences to the family, friends, colleagues and patients of the late Dr. John Lynch on his untimely passing.
Our thoughts in particular are with his wife Louise and children, Danny and Katie.
A new study involving Epilepsy Ireland service users and members which looked at the attitudes of people with epilepsy in Ireland to integrated person centred care (IPCC) has been published in the latest edition of the medical journal, Epilepsy & Behaviour.
A shortage of Epanutin Infatabs 50 mg has been confirmed in Ireland by the HPRA.
Manufacturing delays have been cited as the reason behind the delay and at present, there is no known date for the return of supply.
We’ve just closed our 2019/20 Research Funding scheme call for applications, and we are delighted to have received a record 16 applications for funding.
Applications address a wide range of topics including SUDEP, Cannabidiol in epilepsy, potential genetics causes and treatments, intellectual disability, mental health in epilepsy, maternal health in epilepsy, seizure detection devices, neonatal seizures, the impact of epilepsy, medication safety and more.
Our Annual All-Cash Mega Raffle took place last Friday in our Head Office and the top prize this year is heading off to lovely Leitrim! The winners in full are as follows:
1st J. McManus, Leitrim
2nd: J.Lyons, Limerick
3rd: E. Whelan, Dublin
Our sellers prize was won by J.Dunne of the Rebel County!