Study finds that lower dose of cannabidiol is as effective as higher dose in Dravet Syndrome.

A Phase 3 study presented at the American Academy of Neurology's Annual Meeting in Philadelphia has provided new evidence of the benefits of pharmaceutical-grade cannabidiol (Epidiolex) in treating Dravet Syndrome. Dravet Syndrome is an infantile onset developmental and epileptic encephalopathy associated with drug-resistant seizures. 

Update on Frisium Supply

Epilepsy Ireland has been made aware of reports of difficulties with the supply of Frisium (Clobazam) 10 mg tablets recently.  We have contacted the Irish Pharmaceutical Union and also the Health Products Regulation Authority to clarify what the position is currently.

There had been a delay with production of Frisium which led to stock being made available on a case by case basis in Ireland by the manufacturers Sanofi. 

Emergency Departments now Have a Better Way to Treat Severe Seizures in Children, thanks to a New Zealand-Australian Study.

Epileptic seizures that last for an extended period of time are among the most common neurological emergencies in children observed in hospitals. These seizures have the potential to be fatal, however the faster doctors can reduce the effects of the seizure, the less chance there is of long-term complications.

The role of neuroscience in treating epilepsy – Prof. Mark Cunningham

Mark Cunningham is the recently appointed Ellen Mayston Bates Professor of Neurophysiology of Epilepsy at Trinity College Dublin. In this piece, he explains the importance of neuroscience in treating epilepsy. ‘

Electricity is life but electricity is an invisible fist punching up your spine, knocking your brains right out of your skull.’

                                                Ray Robinson