To mark SUDEP Action Day 2020, Epilepsy Ireland are announcing the results of a survey of over 300 people with epilepsy on awareness of sudden unexpected death in epilepsy (SUDEP) among people with epilepsy and about communications between them and their healthcare team about SUDEP.
For #SUDEPActionDay2020, Lucy Dineen shared with us how her family have been impacted by SUDEP....
Epilepsy Ireland are delighted to be a featured charity as part of the 'Gift Back' appeal - a new initative launched by Marketing Network Group.
The Department of Social Protection and Employment Affairs have commissioned a survey seeking feedback from people living with a disability to investigate the cost of living with a disability in Ireland.
While the questions will not be applicable to all people with epilepsy, it is important to have insight from those who may be living with potentially uncontrolled epilepsy or parents and/or carers of people with uncontrolled epilepsy who have additional needs.
Epilepsy Ireland are currently seeing candidates for the postion of Fundraising & Communications Manager.
The successful candidate will become part of our senior management team and be responsible for developing a new multi-year income strategy in order to support the work we do in communities across Ireland and to achieve our overall vision of a society where no person's life is limited by epilepsy.
With our national fundraising week, Rose Week, now behind us we want to express our thanks and gratitude to everyone who contributed to the week; took part in a socially distant fundraising event; donated; or liked & shared our posts to increase awareness of our work.
The team here at Epilepsy Ireland have been inspired by the efforts of so many over the course of this pandemic and during Rose Week in order to support the work that we do on the behalf of people with epilepsy and their families.
As part of our efforts to raise funds for our work during Rose Week, we have asked people to consider devising a virtual fundraising challenge that people can take part in safely from wherever they may be. 