Epilepsy Ireland to address Oireachtas Committee on Media regarding Online Safety & Media Regulation Bill

We are delighted to provide an update to our members and supporters regarding our ongoing advocacy campaign for #EpilepsyWeek. Today we have been raising awareness of the need for the proposed Online Safety & Media Regulation Bill to contain a reference to potentially harmful online content which - in itself - is designed to cause harm. You can read more on that HERE. 

#EpilepsyWeek Day 5 - Online Safety & Media Regulation Bill

The final issue we raise as part of #EpilepsyWeek is concerning an upcoming piece of legislation called the Online Safety & Media Regulation Bill. 

The bill aims to protect our citizens from harmful content online which is very welcome however - we believe that a specific reference could be made in the legislation to help protect people with photosensitive epilepsy online and to ensure that a particularly disgusting form of online trolling will be a criminal offence in Ireland.

#EpilepsyWeek Day 3 - Reasonable Accommodations for Students with Epilepsy

Today as part of #EpilepsyWeek, we are highlighting an issue which specifically impacts on our young people with epilepsy who are sitting their Leaving Certificate. 

Currently, if a student with epilepsy has a seizure during their exam and are unable to complete their exam as a result, there is no provision to resit this exam within the same cycle. Instead, students with epilepsy will have to wait a year until the next cycle to retake their exam. 

National Epilepsy Week 2021

National Epilepsy Week takes place next week and for the week, we will be highlighting key advocacy issues which are facing people with epilepsy and their families. 

Epilepsy Ireland have been in contact with TD's and Senators highlighting some of these issues and asking that they #AdvocateForEpilepsy. The issues we have identified are as follows:

Research Request - NUIG student seeking responses to survey on disclosure

NUIG Health Psychology postgraduate student Caoimhe O'Sullivan is seeking feedback from people with epilepsy as part of her study focussing on disclosure of a non-visible health condition.

Epilepsy is an invisible condition for many and Caoimhe's study will be aiming to quantify how the disclosure of a condition can impact on a person's wider health & well-being.