News | Page 7 | Epilepsy Ireland

Children with Epilepsy due to Genetic Abnormality respond better to Ketogenic Diet- American Research finds

Saturday, August 31, 2019

New research from the Ann & Robert H Lurie Children’s Hospital of Chicago has found that young children with epilepsy caused by genetic abnormality had a better response to the ketogenic diet compared to children with other types of epilepsy.

The ketogenic diet is a low carbohydrate, high fat diet that is used to treat epilepsy which has not responded to other treatments. More information on this can be found here.

Gabitril Supply-Update

Thursday, August 15, 2019

A shortage of Gabitril (5, 10 & 15mg) film coated tablets has been confirmed by the Health Products Regulation Authority with manufacturing delays cited as the reason for the shortage.

The HPRA have stated that the expected return date of normal supply is October 2019.

Epilepsy Ireland contacted both the HPRA and the manufacturers of Gabitril-TEVA-seeking further information on the shortage.

Genomics Module developed within EPR

Tuesday, August 13, 2019

A new genomics module in the Irish National Epilepsy Electronic Patient Record has been developed by researchers in FutureNeuro & the HSE Epilepsy Lighthouse Project.

The new research was published in the latest issue of the journal Epilepsia; the leading source for clinical research on epilepsy.

More research required on cannabis based products-reports from NICE & NHS

Tuesday, August 13, 2019

Two reports recently published in the UK regarding the use of cannabis based products for a number of medical conditions have pointed to the need for further clinical evidence & research regarding their use to treat severe treatment-resistant epilepsy.

SSNO Funding Approval

Friday, August 9, 2019

We are delighted to confirm that our application under the Scheme to Support National Organisations in the Community and Voluntary Sector 2019-2022 has been successful.

Data published from largest ever study of genetic sequences of people with epilepsy.

Wednesday, August 7, 2019

A worldwide study has identified genetic links between severe forms of epilepsy and less severe forms. “Ultra-Rare Genetic Variation in the Epilepsies: A Whole-Exome Sequencing Study of 17,606 Individuals” was published last week in the American Journal of Human Genetics.

CBD-based drug moves closer to authorisation in Europe

Wednesday, August 7, 2019

**See latest developments regarding this drug here**

Disney actor’s cause of death confirmed as SUDEP

Wednesday, August 7, 2019

It has been confirmed that the death of Disney actor Cameron Boyce in July was a result of Sudden Unexpected Death in Epilepsy (SUDEP).

The cause of death was confirmed by the Los Angeles County Coroner last week. The actor, aged 20, had amassed thousands of fans from his roles in Descendants and Jessie.

Gabitril Supply

Thursday, August 1, 2019

A shortage of Gabitril (5, 10 & 15mg) film coated tablets has been confirmed by the Health Products Regulation Authority with manufacturing delays cited as the reason for the shortage.

The HPRA have stated that the expected return date of normal supply is October 2019.

"Priorities for Epilepsy Research"-Thank You

Tuesday, July 30, 2019

Epilepsy Ireland would like to express our sincere gratitude to everyone who took the time to complete our recent survey on “Priorities for Epilepsy Research.”