A new study involving Epilepsy Ireland service users and members which looked at the attitudes of people with epilepsy in Ireland to integrated person centred care (IPCC) has been published in the latest edition of the medical journal, Epilepsy & Behaviour.
A shortage of Epanutin Infatabs 50 mg has been confirmed in Ireland by the HPRA.
Manufacturing delays have been cited as the reason behind the delay and at present, there is no known date for the return of supply.
We’ve just closed our 2019/20 Research Funding scheme call for applications, and we are delighted to have received a record 16 applications for funding.
Applications address a wide range of topics including SUDEP, Cannabidiol in epilepsy, potential genetics causes and treatments, intellectual disability, mental health in epilepsy, maternal health in epilepsy, seizure detection devices, neonatal seizures, the impact of epilepsy, medication safety and more.
Our Annual All-Cash Mega Raffle took place last Friday in our Head Office and the top prize this year is heading off to lovely Leitrim! The winners in full are as follows:
1st J. McManus, Leitrim
2nd: J.Lyons, Limerick
3rd: E. Whelan, Dublin
Our sellers prize was won by J.Dunne of the Rebel County!
Fannin Ltd have been in touch to advise Epilepsy Ireland of a recent name change relating to one of the products they supply.
The product regards the oral suspension of Clobazam which is a medication for people with epilepsy and was was previously branded as Tabclob.
This week marks Charity Trustees' Week 2019 - a week where we recognise the efforts and dedication of the voluntary boards of charities across the country.
The National Institute for Health and Care Excellence in the UK (NICE) has recommended the CBD-based medication Epidyolex for use on the NHS in the UK in Lennox-Gastaut syndrome and Dravet syndrome, two rare, severe forms of epilepsy. Epidyolex received marketing approval for use in the EU in September.
Further to our most recent update regarding Mysoline supply here, the HPRA have confirmed with us that the manufacturing issues will see supply issues of Mysoline 250mg extended until April 2020.
In the interim, the HPRA have confirmed that he generic version of Mysoline (Primidone 250mg) will remain available for the duration of the Mysoline shortage.
Epilepsy Ireland is a proud member of MyLegacy and November marks MyLegacy month.
MyLegacy month highlights the importance of making a will. Making a will is oftentimes something that is put off by people across the country and it is also an aspect of life that many don’t like to think about.
MyLegacy month raises awareness that making a will is actually a much more straightforward and cost-effective process than what you may think.
A new gene therapy treatment for temporal lobe epilepsy (TLE) could be developed according to new research by a German/ Austrian team.