Since the foundation of Epilepsy Ireland in 1966, we have always been a membership based organisation. This means that we are run by our members in accordance with our constitution for the benefit of people with epilepsy and their families.
Thank you to everyone who has booked tickets for our National Conference. The event is now booked out and we are operating a waiting list. Please call 01 4557500 or email info@epilepsy.ie if you wish to be on the list.
The conference will address a number of key topics including
Dr. Colin Doherty is a consultant neurologist and Honorary Senior lecturer in neurology at St James's Hospital in Dublin. He was trained in the Partners neurology residency programme at Harvard Medical School, Boston and subsequently completed Fellowships in Epilepsy and Cognition. He has published widely in the areas of brain imaging in epilepsy, the genetics of epilepsy, functional imaging of language and clinical epileptology and neurology.
Mary will discuss the Epilepsy Lighthouse project, which was built upon the success of the Epilepsy Patient Record in Beaumont Hospital. The Project is currently working with 50 children and 50 adults with Intellectual Disabilities who also have epilepsy to develop a new paradigm of healthcare delivery for Ireland.
Jarlath will be discussing "Epilepsy Partnership in Care" or EPiC. The project allows people with epilepsy to work together with health service personnel to design care processes that suit patient needs and respect their individual preferences.The EPiC project is a collaboration between the Health Research Board (HRB), the Health Services Executive and The RCSI.
Helium Arts is the national children's arts and health organisation. The organisation brings art, creativity and play to children and teenagers in hospitals and healthcare settings across Ireland. Emma will be discussing Helium and Epilepsy Ireland joint projects which have helped young people with the condition through creativity.
Important information for those in possession of Buccolam.
The Health Products Regulatory Authority have today (August 29th) issued a pharmacy-level recall for certain batches of Buccolam Oromucosal Solution.
The reason for the recall is that there is a potential quality defect in the syringe cap components of those batches. Replacement stock is now available for pharmacists to order.
The recently established Valproate Response project team have written to all female patients currently taking valproate (Epilim) outlining the risks of the drug in pregnancy and the need to discuss treatment with their medical team. These letters have been sent to 3,500 patients and are due to arrive in the post today or tomorrow.
Epilepsy Ireland's award-winningTraining for Success course now has mathematics on it's programme. Based on campus at the Institute of Technology Sligo, the course has had over 250 young people with epilepsy attend since its' inception in 1998. Since that year 85% of graduates have found a job or upskilled after they completed the programme.
The FETAC Level 5 Major Award now includes the following modules