The largest study of its kind, led by international researchers including scientists at RCSI (Royal College of Surgeons in Ireland), has discovered 11 new genes associated with epilepsy.
The research is published in today’s issue of Nature Communications. It greatly advances knowledge of the underlying biological causes of epilepsy and may inform the development of new treatments for the condition.
A recent study from the Netherlands has tested the effectiveness of Nightwatch, a new seizure detection device. This device is a bracelet which uses factors like heart rate and movement to recognise “major seizures”.
Support Epilepsy Ireland by getting involved in ‘Purple Day 2019’ and host a purple themed event such as a Coffee Morning, Wear Purple to Work/School, Purple Run or create your own event. You could also ask your local town hall to light up purple to raise awareness about epilepsy. To find out more, contact our Purple Day Coordinator Luke Meany on 01 4557500 or lmeany@epilepsy.ie.
Epilepsy Ireland has recently been informed by Contactors Medical Bureau, the company who provide the emergency contact service linked to the Epi Alert Bracelet, that they are closing the service from Friday 21st December.
We regret that this long-standing service is to close. Unfortunately, the circumstances are outside of our control. After this date, users of the service are advised not to wear the Epi Alert bracelets any longer.
GW Pharmaceuticals has announced positive top-line results of the second randomized, double-blind, placebo-controlled Phase 3 clinical trial of EPIDIOLEX® (cannabidiol or CBD) CV in the treatment of seizures associated with Dravet Syndrome.
The winners of our Mega-raffle draw has been made by Epilepsy Ireland CEO, Peter Murphy which was overseen by solicitor, Stephen Bradley.
1st Prize €2000, Ticket No:14181. G. Daly
2nd Prize €1000, Ticket No: 00713. K. Kennedy
3rd Prize €500, Ticket No: 24433 M.Healy
Sellers prize €200 H. Pescod
From today, the Health Products Regulatory Authority (HPRA) is taking part in the third annual social media campaign to promote the importance of reporting suspected side effects from medicines.
FutureNeuro, a €13.6 million SFI Research Centre has been launched at RCSI, Dublin today. The Centre aims to translate breakthroughs in understanding of brain structure and function to transform the patient journey for people with neurological diseases.
The HSE sodium valproate (Epilim) Patient Support Helpline will close this Friday (November 16th).
The Patient Support Team can help if you took Epilim during a previous pregnancy and may be concerned about your child or the drug.
[Update: Contact details removed as the Helpline has now been closed]