November 2nd to November 8th marks #MedSafefyWeek and the theme of the week is "Every Report Counts".
Epilepsy Ireland and OACS Ireland have received an invitation from the Minister for Health, Deputy Stephen Donnelly to meet regarding our ongoing campaign surrounding Sodium Valproate (Epilim) next Wednesday. (**Update 2/11/20** - a unavoidable diary change has meant we are now meeting with the Minister later this month with new date scheduled for 23/11/20.)
A new report commissioned by our colleagues in Children In Hospital Ireland (CIHI) has highlighted the additional costs families face when they have a sick child or a child with a long term health condition.
SUDEP Action Day 2020 took place on Friday October 23rd. The day aims to raise awareness of Sudden Unexpected Death in Epilepsy and encourages people with epilepsy to know the risks around SUDEP and what they can do to reduce them.
For #SUDEPActionDay2020, Lucy Dineen shared with us how her family have been impacted by SUDEP....