As a member of Charities Institute Ireland (CII), Epilepsy Ireland are supporting the priorities outlined by the CII.
Specifically, CII have identified three policy areas which requires action from the the 33rd Dáil. They are as follows:
As many of our members and supporters will be aware, we have been working closely with our colleagues in OACS Ireland (Organisation for Anti-Convulsant Syndrome) for the last number of years regarding their ongoing work to support families affected by Sodium Valproate (Epilim).
With the General Election set to take place on February 8th Epilepsy Ireland is using the opportunity to further highlight matters important to people with epilepsy and their families with all election candidates.
We have selected six issues which are frequently highlighted by the people with epilepsy and their families we work with as being major factors in their day to day lives. These were also among the most common issues highlighted in our recent advocacy survey.
As a member of the Disability Federation Of Ireland (DFI), Epilepsy Ireland are supporting the recommendations made by DFI to sitting and prospective TDs concering the rights of the 600,000 people living in Ireland today - many of whom are living with epilepsy.
DFI work to ensure that people with disabilities are treated equally in Irish society. As part of their General Election campaign, DFI are asking candidates to commit to:
As a member of The Wheel, Epilepsy Ireland are supporting the recommendations made by the Wheel to sitting and prospective TD's concering health research.
Futureneuro have announced University College Cork as their newest academic partner.
Initially, UCC’s collaboration with Futureneuro will come in the form of Dr. Danny Costello of Cork University Hospital & UCC who will join Futureneuro as a funded investigator.
As a member of Health Research Charities Ireland (HRCI), Epilepsy Ireland are supporting the recommendations made by the HRCI to sitting and prospective TD's concering health research.
As a member of the Neurological Alliance of Ireland (NAI), Epilepsy Ireland are supporting the calls made in the NAI pre-election manifesto.
There are over 800,000 people living in Ireland with a neurological condition; approximately 40,000 of these have epilepsy. Improvements in neurological care and service must be a priority for the next Government and indeed, all elected members of the 33rd Dáíl.
While upcoming days like International Epilepsy Day and Purple Day are very important in raising awareness of the condition that binds us all amongst the wider public, every single day is an awareness day for our dedicated Community Resource Officers through the events they hold and the services
A new study which looked at the working relationship between HSE Epilepsy Nurse Specialists and Epilepsy Ireland’s Community Resource Officers in delivering patient-centred care for people with epilepsy in Ireland has recently been published in the Journal of Interprofessional Care.