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Today is International CDLK 5 Awareness Day

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X Chromosome

June 17th is International CDLK 5 Awareness Day. CDLK 5 (or CDD) is a disorder of brain development, characterized by epilepsy and developmental delay.

CDLK5 is a rare condition and can be very challenging for those living with it and the families that support them. Unfortunately, there are currently no specific treatments for CDD which is why we were proud to support research in 2022 that could potentially lead to the development of specific targeted treatments for those living with CDLK5.

On this important awareness day, we are re-sharing a video we recorded with Erva Ghani from the RCSI who is carrying out this research. You can watch the video below.

To learn more about CDLK5, visit the CDLK5 Ireland website.