News

Yesterday marked a significant milestone for families affected by Sodium Valproate in Ireland, with the appointment of an independent Chair for the inquiry which will investigate the historical licensing and prescribing of Sodium Valproate in Ireland.

Sodium Valproate is an effective anti-seizure medication but it can cause birth defects, neuro-developmental disorders and autism in children whose mothers take such medicines during pregnancy.

A Chairperson has been appointed for the Sodium Valproate Inquiry, as campaigned for by Epilepsy Ireland and OACS Ireland.

The Annual General Meeting of Brainwave, The Irish Epilepsy Association (trading as Epilepsy Ireland) for the year ending 31.12.23 was held on Thursday June 20th via zoom.

Important new patient information guides have been produced for males and females taking Sodium Valproate; as well as females taking Topiramate.

June 23^rd is Dravet Syndrome Awareness Day.

While epilepsy is not rare, there are rare subsets of the condition, and Dravet Syndrome is one such type of rare epilepsy.

If you are living with Dravet Syndrome or Lennox Gastaut Syndrome - or supporting a loved one with the condition - we need your help.

Read about our activities across 2023 as we continued our journey towards a society where no person's life is limited by epilepsy.

June 17^th is International CDLK 5 Awareness Day. CDLK 5 (or CDD) is a disorder of brain development, characterized by epilepsy and developmental delay.

Read about an International report which had a huge contribution from young people with epilepsy in Ireland.

If you're aged between 18 & 28 and living with epilepsy, you might be able to help NUIG with a new piece of research they are conducting.