Our National Conference took place in Cork this past weekend with over 200 attendee's from across the Country joining us for a day of discussion & learning on Epilepsy.
The Health Products Regulatory Authority have confirmed that there is a shortage of Mysoline (Primidone) 250mg in Ireland.
Manufacturing delays have been cited as the reason behind the delay and the expected return date of the drug is the end of December 2019.
Further to our recent news article here, we can confirm that CBD based drug Epidyolex has received marketing approval by the EU commission.
Approval for the drug has been granted for in Lennox Gastaut & Dravet Syndromes in patients over two years old who are already prescribed Clobazam (Frisium). The marketing approval will apply to all EU member states, including Ireland.
Epilepsy Ireland were delighted to attend the Health Research Charites Ireland conference in Dublin yesterday.
The big reveal of the day from our colleagues in the HRCI was regarding their rebrand from the MRCG (Medical Research Charities Group) to their new name of the HRCI.
Advocacy on issues relating to epilpesy has been a key aspect of our work since our formation in 1966.
As we work towards a society where no person's life is limited by epilepsy, we want to hear about the issues that are close to person's with epilepsy and their families in order to represent them to the best of our abilities.
A meta-analysis of studies regarding epilepsy surgery has concluded that the earlier surgical intervention takes place, the more chance a person has of becoming seizure- free.
The analysis was conducted by researchers from the Sahlgrenska Academy of the University of Gothenburg in conjunction with the Swedish Council for Assessment of Health Technology.
Epilepsy Ireland’s 10th Annual All Cash Mega Raffle is officially open!
Tickets for the raffle cost only €3 and you could be in with a chance of winning €2,000, €1,000 or €500 when the big draw takes place on November 15th.
Further to our most recent update regarding Gabitril supply in Ireland, Gabitril’s manufacturer TEVA have been in touch to confirm that the measure regarding the extension of shelf-life for 10mg & 15mg tablets has been accepted by the HPRA.