FINTEPLA (Fenfluramine) approved by EU Commission for use in Dravet Syndrome

The European Commission has approved the use of a new drug as an add-on therapy for the treatment of Dravet Syndrome in patients 2 years and older.

The Commission’s approval of FINTEPLA (Fenfluramine) will mean that the drug’s manufacturers can now apply to European member states regulatory authorities to make the drug available and/or reimbursed  in that country.

#EpilepsyDay - Epilepsy Ireland release key findings from survey of General Public.

As part of the lead up to #EpilepsyDay, we commissioned a survey of 1,000 members of the general public on their understanding, knowledge & attitudes towards epilepsy.

The survey was conducted online between the 13th - 17th January and received a full compliment of 1,000 responses. 

The key findings of our survey are as follows:

Minister for Health announces funding for Medical Cannabis Access Programme.

Updated: 2nd February 2021

The Minister for Health, Deputy Stephen Donnelly has announced that the Medicinal Cannabis Access Programme (MCAP) has been added to the HSE Service Plan for 2021, a move that will enable the funding and delivery of the MCAP this year. The MCAP was established through legislation passed in 2019 but has not been made operational as yet.