National Epilepsy Week 2026 took place from May 18th – 24th and across the week, we shared a number of stories from our volunteers which helped to raise awareness of epilepsy and ultimately bring us closer towards a society where no person’s life is limited by epilepsy.
In case you missed them, we have linked to each of these stories below:
- Shannon shared her story of living with epilepsy and how she navigates the challenges that can bring. You can read her story in full by visiting the ‘Life with Epilepsy’ page on our website.
- Julia outlined her approach on her experience of life with epilepsy. You can read her story in full by visiting the ‘Life with Epilepsy’ page on our website.
- For #EpilepsyWeek 2026, Serena shared her experience of epilepsy and how her family and friends have supported her. You can read her story in full by visiting the ‘Life with Epilepsy’ page on our website.
- Lauren reflected on her journey with epilepsy and spoke about some of the unseen challenges that it can bring. You can read her story in full by visiting the 'Life with Epilepsy' page on our website.
In the lead up to #EpilepsyWeek, we also launched a new storybook for children preparing for an EEG.
- Written by our media volunteer Paula and inspired by her real-life experiences of being a mother to epilepsy warrior Leo, we published the storybook “Sam and the Brain Wave Adventure”. You can read more about this and download this new book by visiting the 'News' section of our website.
Finally, we also shared vital information about seizure first aid and our key words of TIME, SAFE, STAY – which you can also learn about by visiting the ‘Seizure First Aid’ section of our website.
Thank you to everyone who supported our activities across #EpilepsyWeek 2026!
Remember, every day is an epilepsy awareness day for Epilepsy Ireland. If you’d like to get involved in our awareness-raising activities, become a media volunteer! You can find out more about this by visiting the ‘Become a Media Volunteer’ page on our website.
If you are living with epilepsy or supporting a loved one with the condition, our services are here for you. If you need any information or support about epilepsy or want to learn more about the services we offer, get in touch with your local Community Resource Officer. You can find their details by visiting the ‘Our Local Services’ section page of our website.