News

Our colleagues in Health Research Charities Ireland (HRCI) have recently published a position paper focusing on data and its importance to health research.

The paper has made three key recommendations to policy makers, which are as follows:

It was great to see our International Epilepsy Day Campaign being raised in the Seanad yesterday by Senator Erin McGreehan.

Senator McGreehan highlighted our three key words of Time, Safe, Stay with fellow Senators and went on to support our ongoing campaign around access to Free Travel for people with epilepsy. You can watch Senator McGreehan's contribution in the video below.

While we launched our campaign on Time, Safe, Stay yesterday for #EpilepsyDay, there was also a lot more happening on digital, broadcast & print media to help create awareness – notwithstanding some of the awareness raising efforts that had already taken place in the lead up to the day. Have a flick through the items below if you’d like to listen back or view more.

Three simple words on how to respond to a seizure

Today is International Epilepsy Day (#EpilepsyDay) and Epilepsy Ireland are appealing to the public to learn more about seizure first aid through the key words of TIME – SAFE – STAY.

To mark International Epilepsy Day 2022, Neuraxpharm have launched a series of new comic strips which may be of interest to parents of children with epilepsy.

The strips follow lead character Emma (age 7) and how she approaches her epilepsy in her day-to-day life. You can find the first three chapters of the strip at the links below:

Our ongoing campaign around reasonable accommodations for students with epilepsy during state exams was recently raised in Dáil Eireann with Minister for Education, Deputy Norma Foley.

The matter was raised was by Deputy Jennifer Murnane O’Connor as part of a wider debate on leaving cert reform.

A new study recently presented at the American Epilepsy Society Annual Meeting has quantified the impact of a genetic diagnosis on the medical management of unexplained childhood epilepsy.

Epilepsy Ireland were pleased to meet with Deputy Heather Humphreys, Minister for Social Protection yesterday regarding our proposals around access to Free Travel for people with epilepsy.

Epilepsy Ireland will be meeting with Minister for Social Protection, Heather Humphreys TD, this coming Tuesday to discuss access to the Free Travel scheme for people with epilepsy.

We very much welcome the Minister meeting with us on this most important issue and we look forward to highlighting the need for amendments to be made to the Free Travel Scheme to improve access to the scheme for people with epilepsy.

A new study focusing on stigma and epilepsy has recently been published in leading epilepsy medical journal, Epilepsia.

The study was conducted by the International League Against Epilepsy’s task force on stigma. For their research, the study’s authors reviewed published studies from between 1985 and 2019 on epilepsy & stigma from 13 global research databases.