News

Everyone at Epilepsy Ireland is deeply saddened to learn of the passing of Bernard Hughes of Togher, Co. Cork.

Bernard was the face of Epilepsy Ireland (then Brainwave) in Cork for over 30 years. For the people of Cork, before there were Community Resource Officers, there was Bernard.

November marks MyLegacy month and this year the campaign is being fronted by celebrity gardener, Diarmuid Gavin.

The campaign is run by the umbrella group My Legacy, which is made up of 80 Irish charities – including Epilepsy Ireland - working together to raise awareness of the importance of legacy giving and the impact this can have for organisations across the Country.

This week is Charity Trustees Week and is a week in which the work & dedication of voluntary boards of Charities across Ireland is acknowledged and recognised.

We are privileged at Epilepsy Ireland to have a dedicated and hard-working board who are committed to achieving a society where no person’s life is limited by epilepsy.

If you are a person who developed epilepsy in childhood – or are a sibling of a person who developed epilepsy in childhood - a new study being conducted by the PENNI research team wants to hear from you (PENNI - Project on educational and neuropsychological outcomes of children with neurological disorders in Ireland).

This week is National Advanced Practice Week, a week in which the importance of Advanced Nurse Practitioners is highlighted.

Epilepsy Advanced Nurse Practitioners play a vital role in epilepsy services in Ireland and have an in-depth knowledge of the medical management and complexities of epilepsy.

Epilepsy Ireland recently closed the application process for our 8th Research call.

Six proposals have been received from researchers across Ireland which focus on areas of research prioritised by Epilepsy Ireland and our service users. These priorities included SUDEP & mortality; cannabinoids in epilepsy; epilepsy in women; psychosocial aspects of epilepsy and genetic & molecular mechanisms of epilepsy.

Speaking in the Dáil yesterday, Taoiseach Micheál Martin agreed that calls for free travel for people with epilepsy who are prevented from driving as a result of their condition is a “fair point”.

The Taoiseach was responding to a question put forward by Deputy Aidrias Moynihan about this longstanding issue for people with epilepsy.

You can watch Deputy Moynihan’s question and the Taoiseach’s response in the video below.

The National PPI Network has officially been launched!

PPI stands for ‘Patient and Public Involvement’ and over the next 5 years, the aim of the National PPI Network is to foster an environment where health research and general research is carried out "with" patients and the public rather than being 'about' or 'for' them.

Epilepsy Ireland are proud to support #MedSafetyWeek.

The annual weeklong campaign is co-ordinated by the Health Products Regulatory Authority (HPRA) in Ireland and aims to increase knowledge amongst the public and patients on how to report suspected side-effects from a medication or vaccine which they have been prescribed or taken.

The Annual General Meeting of Brainwave The Irish Epilepsy Association (trading as Epilepsy Ireland) took place on 30^th September 2021. For the second year in a row, the meeting was held via Zoom.