We have published our ‘Use of funds’ statement for 2020 which outlines for our members, service users, donors and the public how we raise and use our income at Epilepsy Ireland. You can read the Use of Funds statement in full by visiting the 'Governance' section of our website.
Alongside the Irish Epilepsy League and the National Clinical Programme for Epilepsy, Epilepsy Ireland have issued further correspondence to the Minister for Health regarding outstanding issues with the Medical Cannabis Access Programme (MCAP).
Our ongoing campaign around access for Free Travel for people with epilepsy has been featured in the Neurological Alliance of Ireland’s 2022 pre-budget submission.
We believe our ask is extremely logical and simple given the unique challenges with travel that people with epilepsy can face due to the nature of their condition.
Our ask around Free Travel is included as follows:
For the 23rd year, Epilepsy Ireland are currently enrolling students for their renowned Training for Success course in IT Sligo.
This QQI Level 5 course is specifically targeted at people with epilepsy whose educational or social development may have been impacted by their condition which in turn has affected their ability to gain employment or pursue further education.
Over the past week, there has been significant coverage around an issue we highlighted as part of National Epilepsy Week concerning the Medical Cannabis Access Programme.
Alongside our colleagues in OACS Ireland, we have written to the Minister for Health regarding the lack of progress on the key issues which we have been campaigning on in relation to Sodium Valproate (Epilim).
In our correspondence to the Minister, we have identified three issues which must be urgently addressed and which require a renewed focus on by the Minister & his Department officials. These are as follows:
In memory of their late colleague Louise Young, our corporate partners in Procurement Leaders will this weekend take part in the inaugural #LousRelay.
Louise Young was a young Wexford woman who sadly passed away at the beginning of this year. She was a person with epilepsy and a dedicated media & fundraising volunteer for Epilepsy Ireland.
Our Community Resource Officers Agnes Mooney, Edel Killarney & Mary Baker are planning on organising an online STEPS programme for parents of children with epilepsy over the coming weeks.
To mark World Brain Day today, our colleagues in the Neurological Alliance of Ireland (NAI) have launched a report on online service provision since COVID-19.
The report is entitled "Looking Beyond COVID-19: Embracing Digital Solutions for Neurological Care" and documents how neurological services - in terms of both healthcare professionals and patient organisations has adapted since the onset of the pandemic.
It certainly appears that Summer is here which is great to see after what has been a difficult first half of the year for so many. However, with Met Éireann issuing a yellow warning for high temperatures for the rest of the week, we wanted to remind people with epilepsy and their families of a few tips to bear in mind during this period of wonderful weather. Extremes of heat can trigger seizures in for some people with epilepsy so these bear these tips in mind while enjoying the sunshine!