News

At the most recent meeting of Dún Laoghaire-Rathdown County Council, local councillors supported a motion on the issue of Free Travel for people with epilepsy and the issue of reasonable accommodations for students during state exams.

The motion was brought forward by Cllr. Séafra Ó Faoláin with the motion receiving unanimous support.

The passing of this motion follows similar decisions from Louth, Wexford & Donegal County Councils earlier this year.

A two year open-label study from the USA on the use of Epidyolex in treatment resistant epilepsy has reported positive findings. 

In advance of their annual conference which is taking place today, the Irish Epilepsy League ran a competition for health science students to write a creative essay in prose/ poetry about epilepsy.

While the evenings are getting longer and the sun a bit brighter, we still need to continue to #HoldFirm with measures to combat COVID-19. While the extension of boundaries to beyond 5km has allowed us all to try different walking routes etc, we are aware that there are still many of our members, followers and supporters who are looking to keep their minds busy during these continuing strange times. 

At the meetng of Donegal County Council earlier this week, Councillors supported a motion on the issue of Free Travel for People with epilepsy. 

The motion was brought forward by Cllr. Jimmy Kavanagh. Cllr. Kavanagh will be bringing forward a motion on the issue of Reasonable Accommodations for students with epilepsy who may have a seizure during state examinations at a future sitting of the council

A new anti-epileptic drug has received marketing authorisation from the European Commission to allow the manufacturers to make the drug available in member states. 

ONTOZRY® (also know as Cenobamate) is a medication indicated for use in the treatment of drug-resistant focal-onset seizures in adults. 

We have published a new mini-site on the subject of Medicinal Cannabis and epilepsy.  This is a topic which is of great interest to many people with epilepsy and parents of children of epilepsy.

Our mini-site has aimed to provide clear and concise information for people on the topic and discusses the evidence that has emerged over the last number of years; access programmes that currently exist and other relevant information on the subject. 

As you know, in the lead up to Purple Day® 2021, we launched the #PurplePatchForPurpleDay challenge. 

This challenge asked people to stay safe in lockdown and do a little bit of knitting for the person with epilepsy in their lives or to just lend a hand to help raise awareness in the lead up to Purple Day®.

All we can say is WOW!!!

Procurement Leaders have today announced a year-long partnership with Epilepsy Ireland in support of our work on behalf of people with epilepsy across Ireland.