WHO adopt Global Action Plan on Epilepsy and other Neurological Conditions
A welcome development recently at the recent World Health Assembly. Read more about what has been agreed.
News
'Patients Deserve Better' to brief TDs & Senators this week.
The Patients Deserve Better campaign is set to brief TDs and Senators in Dáil Eireann this week to press the need for investment in Ireland’s neurology nurse specialist capacity.
The campaign has been running since last year and is being coordinated by our colleagues in the Neurological Alliance of Ireland.
Ireland currently has a shortfall of 100 neurology nurses and the campaign is seeking to press Government and policymakers to address this shortfall.
Can you help support reimbursement for a new Anti-epileptic drug?
If you experience Focal-Onset seizures and/or have been prescribed the medication ONTOZRY® (Cenobamate), we need your help!
Sodium Valproate Inquiry Update
Epilepsy Ireland and OACS Ireland met with Department of Health officials yesterday to discuss the establishment of the long-awaited Sodium Valproate inquiry.
There was an open and honest discussion about the delays in establishing the inquiry to date and OACS Ireland conveyed the frustration families are feeling as a result.
Sodium Valproate Inquiry Update.
Alongside our colleagues in OACS Ireland, we will be meeting with the Minister for Health this week to discuss the establishment of the long-awaited Sodium Valproate inquiry.
Details on Deferred Leaving Cert Examinations announced.
There has been a step forward on one of our major advocacy campaigns. Read more on what has happened; and what our focus turns to now.
New series of Mid-Morning Mindfulness announced!
At the beginning of the year, we trialled a new online event on mindfulness for people with epilepsy and family members of a person with epilepsy. The online event is led by our Community Resource Officer, Cliona Molloy.
Minister for Health Questioned on establishment of promised Sodium Valproate inquiry
The establishment of an inquiry into the historical licensing and prescribing of Sodium Valproate continues to be raise in the Dáil.
Outstanding Valproate Commitments raised in Dáil and media.
We are continuing to campaign for families affected by Sodium Valproate (Epilim). Read our latest news update.
This week is National Volunteering week - will you become an EI Volunteer?
This week is National Volunteering Week - a week in which we celebrate the incredible work which is done by volunteers across Ireland.
At Epilepsy Ireland, we depend on the support of our wonderful volunteers across the length and breadth of the country – to help us raise the vital funds required to continue our work towards a society where no person’s life is limited by epilepsy; and to help raise awareness of a condition which affects 40,000 people across Ireland today.