Skip to main content

News

Art Submissions invited in advance of 13th Asian & Oceanian Epilepsy Congress

Last Updated:

While the evenings are getting longer and the sun a bit brighter, we still need to continue to #HoldFirm with measures to combat COVID-19. While the extension of boundaries to beyond 5km has allowed us all to try different walking routes etc, we are aware that there are still many of our members, followers and supporters who are looking to keep their minds busy during these continuing strange times. 

Donegal County Council pass motion supporting key Epilepsy Ireland advocacy issue

Last Updated:

At the meetng of Donegal County Council earlier this week, Councillors supported a motion on the issue of Free Travel for People with epilepsy. 

The motion was brought forward by Cllr. Jimmy Kavanagh. Cllr. Kavanagh will be bringing forward a motion on the issue of Reasonable Accommodations for students with epilepsy who may have a seizure during state examinations at a future sitting of the council

ONTOZRY® granted marketing authorisation by European Commission

Last Updated:

A new anti-epileptic drug has received marketing authorisation from the European Commission to allow the manufacturers to make the drug available in member states. 

ONTOZRY® (also know as Cenobamate) is a medication indicated for use in the treatment of drug-resistant focal-onset seizures in adults. 

Epilepsy Ireland Launch new mini-site on issue of Medicinal Cannabis & Epilepsy

Last Updated:

We have published a new mini-site on the subject of Medicinal Cannabis and epilepsy.  This is a topic which is of great interest to many people with epilepsy and parents of children of epilepsy.

Our mini-site has aimed to provide clear and concise information for people on the topic and discusses the evidence that has emerged over the last number of years; access programmes that currently exist and other relevant information on the subject. 

#PurplePatchforPurpleDay

Last Updated:

As you know, in the lead up to Purple Day® 2021, we launched the #PurplePatchForPurpleDay challenge. 

This challenge asked people to stay safe in lockdown and do a little bit of knitting for the person with epilepsy in their lives or to just lend a hand to help raise awareness in the lead up to Purple Day®.

All we can say is WOW!!!

Training For Success Course Manager Maire Tansey recognised by EFNA advocacy awards

Last Updated:

We are delighted to announce that our Training For Success Course Manager, Maire Tansey, has been acknowledged in the European Federation of Neurology Associations Advocacy (EFNA) Advocacy Awards.

The biannual awards recognise the contribution of an individual or group to the development and promotion of advocacy for people with neurological disorders in Europe. The topic this year was ‘Action against stigma’.

NAI Launch report on resourcing of Neurological Services

Last Updated:

To mark Brain Awareness Week 2021, our colleagues in the Neurological Alliance of Ireland(NAI) have launched a report on the resourcing of neurology services in Ireland. 

The report is an update to a similar paper published 5 years ago and offers an update on how access to services currently stand. Unfortunately, the report notes that there is significant progress to be made when it comes to improving access to neurological services in Ireland.