News

In recent weeks, we have made calls alongside our colleagues in OACS Ireland for an Independent Inquiry for families affected by Sodium Valproate (Epilim) where the drug was prescribed to women of child-bearing age. The effects of exposure to sodium valproate in utero are well documented, with 30-40% of children exposed to valproate being born with a neurodevelopmental condition and 10% being born with a congenital malformation.

The European Federation of Neurological Associations have published the findings from their recent international survey on stigma experienced by those living with a neurological condition across Europe.

We recently shared the survey across our social media channels and we would like to thank everyone who took the time to take part.  

-Epilepsy ‘Myth-Buster’ urges people with epilepsy to consider joining Epilepsy Ireland’s Training for Success-

- Current TFS student Debra Kobe credits course as having hugely positive impact on her life-

A major international study based in Ireland has reported exciting new discoveries which could lead to the development of new drugs to treat epilepsy.

The findings of the study are the culmination of seven years of research involving 35 scientists across eight European countries and was co-ordinated right here in Ireland by both FutureNeuro and the RCSI.

As part of the World Brain Day themes of #ONEWORDFORCOVID and #SAVEMYCHARITY, the Neurological Alliance of Ireland has made a submission to the Oireachtas Committee on COVID-19 to outline the issues that are facing both those living with a neurological conditions and the charities that support them. 

-Epilepsy Ireland seeking participants for ‘Training For Success’ programme based in IT Sligo-

- Course renowned as pathway to further education or workforce for people with epilepsy-

For the 22^nd year, Epilepsy Ireland’s renowned ‘Training For Success’ programme based in IT Sligo is seeking participants for the 2020/21 year.

In response to today's developments in the UK regarding the publication of a two year inquiry into how the British healthcare system responded to reports from patients regarding sodium valproate - and which has subsequently recommended that the British Government apologise to those who have been impacted by exposure to sodium valproate in utero - we have immediately written jointly with OACS Ireland to new Healt

-New Government face demands for Independent Inquiry from families impacted by Sodium Valproate (Epilim) in Ireland-

-Independent Inquiry in UK recommends State Apology for victims-

The outcome of a two-year inquiry in the UK which investigated how the British Healthcare authorities responded to reports of patient concerns regarding the use of sodium valproate (epilim) in pregnancy has today issued their long awaited report.

Survey of women with epilepsy identifies serious concerns with Sodium Valproate safety measures