Epilepsy Ireland members and service users are invited to attend an upcoming workshop on Patient & Public Involvement (PPI) in research.
The workshop will take place on October 6th from 10:30am – 2:00pm and is jointly organised by our colleagues in FutureNeuro and EBRA (European Brain Research Area).
We are delighted to be inviting research proposals as part of our 8th Research Call under our Research Funding Scheme.
A new module on seizures has been added to the HSE's eLearning platform HSeLanD.
HSeLanD contains over 200 eLearning programmes that is only available to HSE professionals.
The new module on seizures is very much welcomed and will provide education and awareness on two key aspects of seizure management for healthcare professionals:
New research recently published in leading Epilepsy Medical journal, Epilepsia, has reported positive results on the use of FINTEPLA® (Fenfluramine) in the treatment of Dravet Syndrome.
Our ongoing campaign around improved access to Free Travel for people with epilepsy has been featured as part of the Disability Federation of Ireland’s pre-budget submission.
A new study which investigated the awareness, knowledge, and practice of healthcare professionals in implementing the Sodium Valproate (Epilim) Pregnancy Prevention Program (PPP) has been published in the medical journal Expert Opinion on Drug Safety.
One of our key objectives at Epilepsy Ireland is "to undertake, encourage, fund and communicate research into the causes of, cures for and management of epilepsy and into the social and psychological effects of the condition".
Our Research Funding Scheme was set up in 2010 to provide epilepsy researchers in Ireland with an avenue to access funding for world-class research that furthered this objective.
Epilepsy Ireland have published our Annual Report for 2020.
The report offers a review of what was an extremely turbulent year due to the onset of the ongoing pandemic.
Recently published research in leading medical journal Epilepsia has highlighted the impact of the pandemic for people with epilepsy.
Epilepsy Ireland has just been awarded the “Improving Quality” (IQ) quality standard.
Improving Quality is a quality system developed specifically for small to medium-sized Community and Voluntary Sector Organisations. The standard has been awarded following an external assessment of our work, practices and impact in August.
IQ addresses all the essential areas necessary for the effective management and governance of a charity. Four elements are assessed: