Media Release
Epilepsy Ireland have appealed to the public to support their National Fundraising Week, Rose Week, which takes place from the 11th -17th October.
The charity has experienced a 50% drop in fundraising since the start of the pandemic, alongside an increase in demand for their one-to-one support services for people with epilepsy and their families.
With the budget taking place this coming Tuesday, Epilepsy Ireland have once again written to Ministers Heather Humphreys, Paschal Donohoe and Michael McGrath regarding our Budget proposals to improve access to Free Travel passes for people with epilepsy.
We believe our proposals are both fair & reasonable – and that Budget 22 represents the perfect opportunity to address this longstanding issue for people with epilepsy and their families.
Epilepsy Ireland are joining with patient organisations across Ireland to support the #resolutionforrare campaign.
The campaign is being co-ordinated by our colleagues in Rare Diseases Ireland and aims to have Irish delegates of the United Nations to support a resolution addressing the challenges of persons living with rare diseases & their families.
Epilepsy Ireland are proud to support the ‘Patients Deserve Better’ campaign.
The campaign has been devised by our colleagues in the Neurological Alliance of Ireland. The campaign aims to highlight the importance of neurology nurse posts across Ireland and crucially, is calling for action to increase neurology nurse capacity in our health service.
Epilepsy Ireland members and service users are invited to attend an upcoming workshop on Patient & Public Involvement (PPI) in research.
The workshop will take place on October 6th from 10:30am – 2:00pm and is jointly organised by our colleagues in FutureNeuro and EBRA (European Brain Research Area).
We are delighted to be inviting research proposals as part of our 8th Research Call under our Research Funding Scheme.
A new module on seizures has been added to the HSE's eLearning platform HSeLanD.
HSeLanD contains over 200 eLearning programmes that is only available to HSE professionals.
The new module on seizures is very much welcomed and will provide education and awareness on two key aspects of seizure management for healthcare professionals:
New research recently published in leading Epilepsy Medical journal, Epilepsia, has reported positive results on the use of FINTEPLA® (Fenfluramine) in the treatment of Dravet Syndrome.
Our ongoing campaign around improved access to Free Travel for people with epilepsy has been featured as part of the Disability Federation of Ireland’s pre-budget submission.
A new study which investigated the awareness, knowledge, and practice of healthcare professionals in implementing the Sodium Valproate (Epilim) Pregnancy Prevention Program (PPP) has been published in the medical journal Expert Opinion on Drug Safety.