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People Talking

How2tell is for people with epilepsy who want to learn HOW to tell others about their epilepsy. Using the experiences of other people (adults aged 18 years+) with a range of forms of epilepsy, How2tell gives practical advice and helps you learn about other people's experiences of telling. How2tell gives practical information about how to: 

  1. Become comfortable with your epilepsy;
  2. Understand the value in telling people;
  3. Decide on who you should tell about your epilepsy and when is the best time and place to bring up the subject;
  4. Use different opportunities to tell;
  5. Tell people depending on who they are;
  6. Make the message ordinary, and
  7. Deal with reactions from who you tell.

Alongside the information contained within the entire How2Tell section of our website, there is also a comprehensive booklet available entitled 'How2Tell'. Talking About Epilepsy'. This resource is available to read and download on our website. 

The How2Tell resources were developed following a study supported by Epilepsy Ireland and led by Prof. Naomi Elliot from the School of Nursing & Midwifery at Trinity College Dublin. In the video below from our 2017 National Conference, Prof. Elliot explains How2tell and more about the study. Please note that the app which was originally launched as part of How2Tell is no longer available and the resource now comprises of this section of our website and the downloadable booklet above. You can read more about the project as a whole by visiting the 'Research' section of our website. 

The How2tell study was conducted by a research team led by Prof. Naomi Elliott from the School of Nursing & Midwifery, Trinity College Dublin, Ireland. The research team thanks the people with epilepsy who shared their invaluable experiences and everyone who supported the study. The quotes are written as spoken by people with epilepsy. The How2tell study was funded by Epilepsy Ireland and Health Research Board. All content in the How2Tell section is the property of Trinity College Dublin and is provided on this website under a licence agreement. Epilepsy Ireland does not have editorial control over the content and shall bear no responsibility for any direct or indirect loss or damage resulting from the use of the information.

© Trinity College Dublin 2017. All rights reserved.

Downloadable Resources