We were delighted to hear that the outstanding team at the Cycle for Shane reached their fundraising goal at the turn of the year – an incredible way to begin 2023 and a huge acknowledgement of their extraordinary efforts in support of Epilepsy Ireland and SUDEP Action last year.
Read how we continued our journey towards a society where no person's life is limited by epilepsy in 2022.
Our colleagues in the International Consortium for Health Outcomes Measurement (ICHOM)– an international non-profit organisation that aims to improve global healthcare – is seeking feedback from adults living with epilepsy in Ireland as part of their continuing project on developing a minimum set of outcomes for people living with epilepsy.
Further to our recent notice on the supply on of Epanutin (you can see our original notice by visiting the 'News' section of our website), we have received a response from the Health Products Regulatory Authority (HPRA) regarding this shortage. You can see this reply below:
The company has not informed us of any changes to the resupply date of Epanutin 50 mg Hard Capsules. The shortage is due to a manufacturing delay affecting multiple countries.
We are due to meet with the State Exams Commission in the New Year. Find out why.
We and our colleagues in OACS Ireland are pleased to inform our members and service users that there have been two positive developments recently regarding our ongoing joint campaign on Sodium Valproate (Epilim).
Our Free Travel campaign continues to be raised in the Dáil.
We have been notified of a further shortage of the Anti-Seizure Medication Rivotril.
December 1st - 7th is Infantile Spasms Awareness Week. Learn more about the week and the key message of STOP.
Our Annual Raffle took place on the 25th of November, and we would like to thank everyone who took the time to enter our draw.
Our raffle is a vital source of fundraised income and while final amounts raised are still being calculated, circa €10k has been raised in support of our work via the raffle – a fantastic amount in what are trying financial times for so many.
Want the latest epilepsy & Epilepsy Ireland news straight to your inbox?
Keep in touch and sign up for our monthly email update!