Last Updated: June 2019
Epilepsy Ireland is dedicated to meeting the needs of people with epilepsy and their families. We aim to do this by providing a range of support & information services; offering training & education programmes for both people with epilepsy and health professionals; by improving public understanding of epilepsy; advocating on behalf of those affected by epilepsy and by supporting Irish research to help better understand and treat the condition.
We employ skilled, experienced staff to deliver on our objectives in these areas, supported by professional expertise in fundraising and administration. In 2018, as per the audited accounts for the year (the latest currently available), the number of employees was 28, comprised of 17 in service delivery & training and 11 in administration & fundraising.
We are grateful for all funding we receive to enable us to meet our objectives and we recognise that public trust in our work and performance is essential. We are committed to providing a high level of accountability and transparency about how we spend our funds.
In 2018, our total income was €2,046,049, of which €752,709 (37% of overall) was in Section 39 grants from the Health Service Executive. This statutory funding is operated under seven regional service level agreements (SLAs) and we provide detailed annual reports to the HSE for each of these agreements.
We require additional funding from other sources in order to continue to provide our services and in 2018, €698,954 was raised through donations, memberships and legacies. This included one-off unrestricted income from legacies (€254,675) and a one-year corporate partnership with PTSB (€160,230). A total of €247,554 was raised through other trading activities that included raffles, lotteries, campaigns, appeals and fundraising events. In 2018, the Fundraising total was therefore €946,508.
Income generating services including training accounted for €159,069 in income, while non-HSE grants including those in relation to Training For Success; National Lottery and Community Enhancement Schemes amounted to €143,589. Investment & other income was €44,174.
Our total expenditure in 2018 was €1,908,487. Of every €1 we spent in 2018, 74c went to direct charitable objectives, which consists of information & support (39c); training & education (17c); awareness raising (8c); advocacy (5c) and epilepsy research (5c).
16c was spent on fundraising and 10c was spent on other expenditure (including administration, governance, maintenance, depreciation). It is our belief that we extract maximum value, for people with epilepsy, from every euro that we spend. (see Expenditure charts below).
The nature of our work, providing personalised support services to people with epilepsy and their families is highly dependent on direct staffing resources, and in 2018, 59% of all expenditure was pay-related. We employ 28 people (23 WTE) and the average salary paid is €34,000. No additional payments or bonuses of any kind are paid to Epilepsy Ireland employees apart from employer pension fund contributions (€57,674 in 2018). In 2009 all staff took a 3% pay cut across the board which was reversed after 8 years on 1st January 2017.
Since 2016, we are reporting on all salaries over €60,000 in bands of €10,000 as per the Statement of Recommended Practice (SORP) for Charities. In 2018, one employee earned between €80,000 and €90,000; no employees earned between €70,000 and €80,000 or between €60,000 and €70,000 and there were no other salaries in excess of €60,000. Our Board members and members of our sub-committees are volunteers who donate freely their time, skills and experience.
Epilepsy Ireland publishes audited accounts and an annual report each year. Since 2014, our financial statements are prepared in accordance with the Statement of Recommended Practice (SORP) for charities and the FRS 102 accounting standard.