Updated June 2020
Epilepsy Ireland is dedicated to meeting the needs of people with epilepsy and their families. We aim to do this by providing a range of support & information services; offering training & education programmes for both people with epilepsy and health professionals; by improving public understanding of epilepsy; advocating on behalf of those affected by epilepsy and by supporting Irish research to help better understand and treat the condition.
We are grateful for all funding we receive to enable us to meet these objectives and we recognise that public trust in our work and performance is essential. We are committed to providing a high level of accountability and transparency about how we raise and spend our funds.
In 2019, as per the audited accounts for the year (the latest currently available), our total income was €1,735,588, of which €764,273 (44% of overall) was in Section 39 grants from the Health Service Executive. This statutory funding is operated under seven regional service level agreements (SLAs) and we provide detailed annual reports to the HSE for each of these agreements.
We require additional funding from other sources in order to continue to provide our services and in 2019, €362,857 was raised through donations, memberships and legacies. A total of € 231,905 was raised through other trading activities that included raffles, lotteries, campaigns, appeals and fundraising events. In 2019, the Fundraising total was therefore € 594,762.
Income generating services including training accounted for €188,564 in income, while non-HSE grants including those in relation to Training For Success (Mayo Sligo Leitrim Education Training Board); National Lottery, Slaintecare Integration Fund and the Support Scheme for National Organisations amounted to €178,373. Investment & other income was €9,616.
Our total expenditure in 2019 was €1,728,249. Of every €1 we spent in 2019, 81 cents went to direct charitable objectives, which consists of information & support (40c); training & education (23c); awareness raising (8c); advocacy (6c) and epilepsy research (4c).
19c of every euro was spent on fundraising. It is our belief that we extract maximum value for people with epilepsy, from every euro that we spend. (see Expenditure charts below).
A change in how we report our expenditure in the annual accounts was introduced in 2019, removing “other expenditure” in line with SORP charity accounting standards. Other expenditure includes administration, governance, maintenance, depreciation and similar costs, which from 2019 are allocated across the different charitable activities and fundraising activities. Had our 2019 expenditure been presented as in previous years, our charitable expenditure would have been 71%, our fundraising expenditure would have been 19% and other expenditure would have been 10%.
The nature of our work, providing personalised support services to people with epilepsy and their families is highly dependent on direct staffing resources. We employ skilled, experienced service and training staff to deliver on our objectives in these areas, supported by professional expertise in fundraising and administration. In 2019, the average number of employees was 27 (22 whole time equivalents), comprised of 17 in service delivery & training and 10 in administration & fundraising.
63% of all expenditure was pay-related in 2019. The average salary paid was €34,400 (€41,600 per WTE). No additional payments or bonuses of any kind are paid to Epilepsy Ireland employees apart from employer pension fund contributions (€57,684 in 2019). In 2009 all staff took a 3% pay cut across the board which was reversed after 8 years on 1st January 2017.
Since 2016, we are reporting on all salaries over €60,000 in bands of €10,000 as per the Statement of Recommended Practice (SORP) for Charities. In 2019, one employee earned between €80,000 and €90,000; no employees earned between €70,000 and €80,000 and one employee earned between €60,000 and €70,000. Our Board members and members of our sub-committees are volunteers who donate freely their time, skills and experience.
Epilepsy Ireland publishes audited accounts and an annual report each year. Since 2014, our financial statements are prepared in accordance with the Statement of Recommended Practice (SORP) for charities and the FRS 102 accounting standard.