Last Updated: August 2021
Epilepsy Ireland is dedicated to meeting the needs of people with epilepsy and their families. We aim to do this by providing a range of support & information services; offering training & education programmes for both people with epilepsy and health professionals; by improving public understanding of epilepsy; advocating on behalf of those affected by epilepsy and by supporting Irish research to help better understand and treat the condition.
We are grateful for all funding we receive to enable us to meet these objectives and we recognise that public trust in our work and performance is essential. We are committed to providing a high level of accountability and transparency about how we raise and spend our funds.
In 2020, as per the audited accounts for the year (the latest currently available), our total income was €1,961,123, which includes €249,075 in non-cash donations representing media and advertising services donated to the charity for our #EpilepsyDay campaign. The total ‘cash’ income therefore was €1,712,048.
Of the total income, €754,884 (38%) was in Section 39 grants from the Health Service Executive. This statutory funding is operated under seven regional service level agreements (SLAs) and we provide detailed annual reports to the HSE for each of these agreements.
We require additional funding from other sources in order to continue to provide our services and in 2020, €443,173 was raised through donations, memberships and legacies (this includes the non-cash donation mentioned above). A total of €103,206 was raised through other trading activities that included raffles, lotteries, campaigns, appeals and fundraising events. Total Fundraising income was therefore €546,379, of which €297,304 was monetary. This was a substantial 50% drop from 2019 when €594,762 was raised. The main reason for this was the impact of the Covid-19 pandemic on almost all forms of traditional fundraising.
Income generating services including training accounted for €96,720 in income. This was also down by almost 50% as a result of the pandemic.
Non-HSE grants including those in relation to Training For Success (Mayo Sligo Leitrim Education Training Board), The Covid-19 Stability Fund for Charities; Slaintecare Integration Fund and the Support Scheme for National Organisations amounted to €505,117. Due to the decline in fundraising and other income, we were grateful to be awarded €258,310 through the Department of Rural and Community Development Stability Fund.
Investment & other income was €58,023 which includes grants of €23,184 from the Community Foundation.
Our total expenditure in 2020 was €1,822,352. This also includes non-cash expenditure of €249,075 (see above), which relates to our annual awareness campaign for International Epilepsy Day. The total ‘cash’ expenditure was therefore €1,573,277.
Of every €1 we spent in 2020, 88 cents went to direct charitable objectives, which consists of information & support (36c); training & education (17c); awareness raising (24c); advocacy (6c) and epilepsy research (5c).
12c of every euro was spent on fundraising. It is our belief that we extract maximum value for people with epilepsy, from every euro that we spend. (please see Expenditure charts below).
The nature of our work, providing personalised support services to people with epilepsy and their families is highly dependent on direct staffing resources. We employ skilled, experienced service and training staff to deliver on our objectives in these areas, supported by professional expertise in fundraising and administration. In 2020, the average number of employees was 25 (20 WTE), comprised of 17 in service delivery & training and 8 in administration & fundraising.
52% of all expenditure was pay-related in 2020. The average salary paid was just over €33,000 (€41,000 per WTE). No additional payments or bonuses of any kind are paid to Epilepsy Ireland employees apart from employer pension fund contributions (€50,415 in 2020). Total pay costs were over €125,000 lower in 2020 compared to 2019. A number of vacant roles during the year were left unfilled due to uncertainty caused by the pandemic, and in addition, management personnel hours/ salaries were reduced by 20% for a portion of the year.
Since 2016, we are reporting on all salaries over €60,000 in bands of €10,000 as per the Statement of Recommended Practice (SORP) for Charities. In 2020, one employee earned between €80,000 and €90,000; no employees earned between €70,000 and €80,000 and one employee earned between €60,000 and €70,000. Our Board members and members of our sub-committees are all volunteers who donate freely their time, skills and experience.
Epilepsy Ireland publishes audited accounts and an annual report each year. Since 2014, our financial statements are prepared in accordance with the Statement of Recommended Practice (SORP) for charities and the FRS 102 accounting standard.