Updated: September 2018
Epilepsy Ireland is dedicated to meeting the needs of people with epilepsy and their families. We aim to do this by providing a range of support & informationservices; offering training & education programmes for both people with epilepsy and health professionals; by improving public understanding of epilepsy; advocating on behalf of those affected by epilepsy and by supporting Irish research to help better understand and treat the condition.
We are a registered charity both with the Charities Section of the Revenue Commissioners (CHY 6170) and the Charities Regulatory Authority (No. 20010553).
We employ skilled, experienced staff to deliver on our objectives in these areas, supported by professional expertise in fundraising and administration. In 2017, as per the audited accounts for the year (the latest currently available), the number of employees was 28, comprised of 18 in service delivery & training and 10 in administration & fundraising.
We are grateful for all funding we receive to enable us to meet our objectives and we recognise that public trust in our work and performance is essential. We are committed to providing a high level of accountability and transparency about how we spend our funds.
In 2017, our total income was €1,676,549, of which €752,376 (45% of overall) was in Section 39 grants from the Health Service Executive. This statutory funding is operated under eight regional service level agreements and we provide detailed annual reports to the HSE for each of these agreements.
We require additional funding from other sources in order to continue to provide our services and in 2017, €344,560 was raised through donations, memberships and legacies and €291,978 was raised through other trading activities that included raffles, lotteries, campaigns, appeals and fundraising events. Income generating services including training accounted for €137,853 in income, while non-HSE grants including those in relation to Training For Success; the Health Research Board and National Lottery amounted to €133,637. Investment & other income was €16,145. (see chart below)
Our total expenditure in 2017 was €1,950,667. Of every €1 we spent in 2017, 73c went to direct charitable objectives, which consists of information & support; training & education; awareness raising; advocacy and research.
17c was spent on fundraising and 10c was spent on other expenditure (including administration, governance, maintenance, depreciation). It is our belief that we extract maximum value, for people with epilepsy, from every euro that we spend. (see charts below).
The nature of our work, providing personalised support services to people with epilepsy and their families is highly dependent on direct staffing resources, and in 2017, 57% of all expenditure was pay-related.
Epilepsy Ireland employs 28 people and the average salary paid is less than €33,000. No additional payments or bonuses of any kind are paid to Epilepsy Ireland employees apart from employer pension fund contributions (€63,328 in 2017). In 2009 all staff took a 3% pay cut across the board which was reversed after 8 years on 1st January 2017.
Since 2016, we are reporting on all salaries over €60,000 in bands of €10,000 as per the Statement of Recommended Practice (SORP) for Charities. In 2017, one employee earned between €80,000 and €90,000; no employees earned between €70,000 and €80,000; one employee earned between €60,000 and €70,000 and there were no other salaries in excess of €60,000. Our Board members and members of our sub-committees are volunteers who donate freely their time, skills and experience.
Epilepsy Ireland publishes audited accounts and an annual report each year and since 2014, our financial statements are prepared in accordance with the Statement of Recommended Practice (SORP) for charities and the FRS 102 accounting standard.