Governance

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Epilepsy Ireland is the national organisation for epilepsy in Ireland. We are a registered charity both with the Charities Regulatory Authority (No. 20010553) and with the Revenue Commissioners (CHY 6170). We are also a Company Limited by Guarantee, registered with the Companies Office (Brainwave The Irish Epilepsy Association CLG, Registered Number 77588).

We are governed in accordance with our Constitution by a Board of Directors comprised of people with epilepsy, family members of people with epilepsy, medical professionals, business professionals and others with a direct interest in our mission and vision.

The Board is advised by a number of sub-committees and is responsible for the overall control and strategic direction of the charity. The Board's decisions are put into effect by the Chief Executive and the Management Team.

Our Board members and members of our sub-committees are volunteers who donate freely their time, skills and experience. None of our directors receive any remuneration for their service.

Reassuring our members, supporters and the public about our standards of governance is very important to Epilepsy Ireland. Some of the ways in which we do this is include:

  • Our Board has formally and fully adopted the Governance Code for the Community and Voluntary Sector.
  • We comply with the Guidelines for Charitable Organisations on Fundraising from the Public
  • Our financial statements are audited annually in accordance with the Statement of Recommended Practice (SORP) for charities and the FRS 102 accounting standard. Our current auditors are Deloitte, one of Ireland’s leading audit firms. Our audited annual accounts from 2011 to 2017 can be found here.
  • We produce a detailed Annual Report outlining our activities and finances. Annual Reports from 2011 to 2017 can be found here.
  • We publish an annual statement on our Use of Funds.
  • We are a PQASSO accredited organisation (Level 1). PQASSO stands for Practical Quality Assurance System for Small Organisations and is the leading quality standard developed for the voluntary sector. You can confirm our Registration here.

The Benefacts website independently gathers financial and governance information on Irish charities from a number of different sources. You can visit the Epilepsy Ireland Benefacts profile here.

For further information on our governance, please contact us.