News

New data regarding the use of Epidyolex (Cannabiniol) in the treatment of the rare condition tuberous sclerosis complex (TSC) has pointed to the use of the product having a positive impact in seizure frequency for the patients included in the trial.

The findings of the study were presented recently at the annual meeting of the American Epilepsy Society.

A new study involving Epilepsy Ireland service users and members which looked at the attitudes of people with epilepsy in Ireland to integrated person centred care (IPCC) has been published in the latest edition of the medical journal, Epilepsy & Behaviour.

The National Institute for Health and Care Excellence in the UK (NICE) has recommended the CBD-based medication Epidyolex for use on the NHS in the UK in Lennox-Gastaut syndrome and Dravet syndrome, two rare, severe forms of epilepsy. Epidyolex received marketing approval for use in the EU in September.

A new gene therapy treatment for temporal lobe epilepsy (TLE) could be developed according to new research by a German/ Austrian team.

An emerging study has established the structure of a protein in our cells which could help improve epilepsy treatments in the future.

Researchers in the United States working out of the UT Southwestern Medical Center used advanced microscope technology in order to establish the structure of Potassium Chloride Cotransporter 1 (KCC1).

A new study published recently in the journal, Epilepsy & Behaviour, has pointed to the use of the medication brivaracetam (Briviact) as a potential adjunctive treatment for those with drug –resistant epilepsy who cannot tolerate the drug levetiracetam (Keppra).

In the week where Epilepsy Ireland officially announced the opening of our 7^th research funding call, we are delighted to see another global acknowledgement of research we have funded.

Data from the Epilepsy Ireland-funded How2Tell study conducted by Trinity College Dublin has been published in the world’s leading epilepsy journal Epilepsia this week.

New research published by the American Academy of Neurology in the latest issue of the Neurology Journal has linked the brain chemical serotonin with a lower risk of seizure-related breathing problems.

The research was led by Dr. Samden Lhatoo of the University of Texas.

Further to our recent news article on this matter, we can confirm that CBD based drug Epidyolex has received marketing approval by the EU commission.



Approval for the drug has been granted for in Lennox Gastaut & Dravet Syndromes in patients over two years old who are already prescribed Clobazam (Frisium). The marketing approval will apply to all EU member states, including Ireland.