Projects funded

Image of a researcher conducting a blood test.

Project: Predicting and monitoring outcomes in Autoimmune Encephalitis (POTA)

Who? Prof Norman Delanty, Consultant Neurologist and Director, Epilepsy Service, Beaumont Hospital & Honorary Clinical Associate Professor, RCSI.

Years funded: 2022-2025

Project: Long non-coding RNAs: regulators of epileptogenesis and potential targets for therapy

Who? Prof Gary Brennan, School of Biomolecular and Biomedical Science, University College Dublin

Years funded: 2022-2025

Project: miR-CDD: Molecular mechanisms, therapeutic targets and biomarkers for CDKL5 Deficiency Disorder (CDD)

Who? Erva Ghani, Royal College of Surgeons in Ireland (Academic Supervisor: Dr. Omar Mamad. Royal College of Surgeons in Ireland)

Years funded: 2022-2026

Project: Circadian biomarkers in pre-clinical and clinical Dravet Syndrome

Who? Radharani Benvenutti, Royal College of Surgeons in Ireland (Academic Supervisor: Dr Cristina Ruedell Reschke, Royal College of Surgeons in Ireland)

Years funded: 2022-2024

Project: EPIVIEWS: Exploring Patient Impact & Value in Epilepsy Wearables for Seizure Monitoring

Who? John David Damalerio, Royal College of Surgeons in Ireland (Academic Supervisor: Prof Colin Doherty, Royal College of Surgeons in Ireland)

Years funded: 2022-2024

Project: Development of a non-invasive ultrasound stimulation approach to modulate the seizure-like firing of induced pluripotent stem cell-derived neurons from epileptic patients

Who? James Britton, Department of Physiology NUI Galway (Academic Supervisor: Dr Leo Quinlan, Department of Physiology, NUI Galway)

Years funded: 2021-2022 

Project: Epilepsy Mortality in Ireland

Who? Dr Yvonne Langan; St James’s Hospital/ Trinity College in collaboration with HRB

Years funded: 2020+ (Ongoing)

Project: An Analysis of the Current Implementation and Societal Impact of Group 1 and Group 2 Driving Restrictions in both Newly Diagnosed and Established Patients with Epilepsy

Who? Prof Norman Delanty; Beaumont Hospital/ RCSI

Years funded: 2020-2021

Project: The microbiome as an environmental trigger for autoimmune epilepsy

Who? Dr. Gianpiero Cavalleri; RCSI;

Years funded: 2018 – 2021

Project: Co-producing health and well-being in partnership with patients, families and communities: The role of the epilepsy patient portal

Who? Dr Mary Fitzsimons; RCSI

Years funded: 2018 – 2020

Project: MicroRNAs in the mechanism of ketogenic diet therapies and as biomarkers in paediatric epilepsy

Who? Prof David Henshall; RCSI;

Years funded: 2016 – 2019

Project: Can Dogs Predict Epileptic Seizures

Who? Dr. Neil Powell; Queens University Belfast

Years funded: 2017

Project: Epilepsy Deaths Register for Ireland

Who? UCC/ Sheffield University;

Years funded: 2015+ (Ongoing)

Project: MicroRNA Biofluid Profiles as Molecular Diagnostics for Response to the Antiepileptic Drug Leveteracitam

Who? Sinead Heavin; RCSI

Years funded: 2014 – 2016

Project: The Collaborative Development of an Evidence-based Educational Resource for Self-disclosure Strategies for People With Epilepsy

Who? Dr Naomi Elliott; Trinity College Dublin;

Years funded: 2014 – 2016

Project: An evaluation of the role of the Epilepsy Specialist Nurse and the impact on patient quality of life.

Who? Prof Agnes Higgins; Trinity College Dublin

Years funded: 2013 – 2016

Project: Demystify the veil of secrecy: a mixed method inquiry of parent-child dialogue about epilepsy and its associated stigma.

Who? Dr Veronica Lambert; Dublin City University

Years funded: 2013- 2016

Project: Genome-wide DNA methylation analysis of hippocampus from patients with pharmacoresistant temporal lobe epilepsy;

Who? Prof David Henshall; RCSI

Years funded: 2012 -2013

Project: A pharmacogenomic study of chronic refractory epilepsy

Who? Dr Gianpiero Cavalleri; RCSI

Years funded: 2010 – 2012

Project: Baroreflex sensitivity in individuals with epilepsy: Does it play a role in SUDEP?

Who? Dr Yvonne Langan; St James’s Hospital

Years funded: 2010 – 2012

Project: Heritability of cognitive endophenotypes in temporal lobe epilepsy

Who? Dr Teresa Burke; University College Dublin

Years funded: 2010 – 2011

Project: The Prevalence of Epilepsy in Ireland Study

Who? Dr Christine Linehan; University College Dublin;

Years funded: 2009