The FACS Forum spoke today at a health committee on Foetal Anticonvulsant Syndrome.
Karen Keely of OACS Ireland, whose three sons all had birth defects after she took sodium valproate, read out emotional statements on behalf of other Mothers who have been affected by the drug. Many of the families attended the hearing.
People with epilepsy in England and Wales are more likely to die of unnatural causes including suicide and fatal accidents to overdoses, a study has found.
Though the risks of dying unnaturally for people with epilepsy are small in absolute terms (0.3-0.5%), they are greater than in people without epilepsy says Dr Hayley Gorton from The University of Manchester.
A natural compound found in cannabis may help to prevent the frequency seizures, according to a review in the Journal of Neurology Neurosurgery & Psychiatry.
The evidence to date, however, is confined to the treatment of children and teens whose epilepsy does not respond to conventional drugs, and rare and serious forms of the condition, warn the researchers.
The Pharmaceutical Society of Ireland has today issued instructions to all pharmacists that they must inform women of child-bearing age of the potential risk of abnormal pregnancy outcomes when supplying sodium valproate (Epilim). This includes providing counselling and including a Package Leaflet and Alert Card with each supply of the drug.
The new directive comes after the European Medicines Agency's recent recommendations on risk minimisation.
FACS Forum encouraged by European Medicines Agency's latest measures
Stopping epilepsy before it begins?
New genetic test can predict adverse reactions to epilepsy drug
Patients with Lennox-Gastaut syndrome improve after cannabidiol treatment
Largest ever neuroimaging study of people with epilepsy
Dáil to vote on medicinal cannabis bill this week
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