Isabel Azu wins Irish Epilepsy League writing competition - read the poem here!
Read the fantastic poem from Isabel in the news section of our website.
News
Rivotril - Further shortage
Epilepsy Ireland has been notified by the Health Products Regulatory Authority (HPRA) that further issues are expected with the supply of the Anti-Seizure medication, Rivotril (Clonazepam).
In September, manufacturing issues created a shortage of the medication and led to difficulties for many patients in having their prescriptions filled. Although supply had returned to normal in recent weeks, it now appears that further shortages are likely.
Important Update on Topiramate(Topamax) for women with epilepsy of childbearing potential
Read more about an important development regarding this Anti-Seizure medication.
Cycle for Shane recognised as part of Mayo People of the Year Awards
Find out why this epic Cycle has been rightly recognised as part of the annual awards!
Reducing epilepsy-related deaths a public health priority – Epilepsy Ireland
Read the statement we have issued for SUDEP Action Day 2022.
Notice on Anti-Seizure Medication Vimpat (Lacosamide)
Epilepsy Ireland have been contacted by UCB, manufacturers of the Anti-Seizure Medication Vimpat (Lacosamide), informing us that their patent exclusivity for the medication has now expired.
This means that other pharmaceutical manufacturers can bring forward generic versions of this medication to be marketed in Ireland.
NCPE issue positive recommendation on reimbursement of Cenobamate (Ontozry®)
The National Centre for Pharmacoeconomics (NCPE) have updated Epilepsy Ireland that they have issued a positive recommendation regarding the potential reimbursement of the anti-seizure medication, Cenobamate.
The medication has been indicated for use in adults living with focal-onset seizures and has posted positive clinical trial results. Epilepsy Ireland made a submission to the NCPE in July supporting reimbursement of the medication.
Rose Week 2022 Epilepsy Ireland appeal for public support for National Fundraising Week
At a time when we have experienced record demand for our services, we have also seen a 50% drop in fundraised income. We need your support this Rose Week.
Epilepsy Ireland AGM 2022
The Annual General Meeting of Brainwave, The Irish Epilepsy Association (trading as Epilepsy Ireland) for the year ending 31.12.21 was held on the 29th September 2022 via zoom.
New epilepsy focussed exhibition to be unveiled at Irish Museum of Modern Art
A new exhibition in the Irish Museum of Modern Art that combines a lived experience of epilepsy; cutting edge science; and music is set to be unveiled this weekend.
At the centre of this exhibition is Debbie Boss. Debbie was diagnosed with a brain tumour in 2014. Although Debbie’s surgery to remove the tumour was successful, she subsequently developed epilepsy. The condition has had a considerable impact on Debbie’s day to day life ever since.