News

TikTok have announced the addition of a new feature aimed at warning people with photosensitive epilepsy that they may be about to view triggering content.

OACS Ireland and Epilepsy Ireland have welcomed today’s announcement by Minister Stephen Donnelly that he will establish an inquiry into the historical licensing and use of Sodium Valproate (Epilim) in pregnancy.

The Minister outlined his commitment to both patient organisations at a meeting on Monday.

**Update 2/11/20** - a unavoidable diary change has meant we are now meeting with the Minister later this month with new date scheduled for 23/11/20.

Epilepsy Ireland and OACS Ireland have received an invitation from the Minister for Health, Deputy Stephen Donnelly to meet regarding our ongoing campaign surrounding Sodium Valproate (Epilim) next Wednesday.

A new report commissioned by our colleagues in Children In Hospital Ireland (CIHI) has highlighted the additional costs families face when they have a sick child or a child with a lon

SUDEP Action Day 2020 took place on Friday October 23rd. The day aims to raise awareness of Sudden Unexpected Death in Epilepsy and encourages people with epilepsy to know the risks around SUDEP and what they can do to reduce them.

To mark SUDEP Action Day 2020, Epilepsy Ireland are announcing the results of a survey of over 300 people with epilepsy on awareness of sudden unexpected death in epilepsy (SUDEP) among people with epilepsy and about communications between them and their healthcare team about SUDEP.

For #SUDEPActionDay2020, Lucy Dineen shared with us how her family have been impacted by SUDEP....

On May 8^th, 2015 I lost my beautiful son Robert to Sudden Unexpected Death in Epilepsy (SUDEP). This came as a shock as we had been repeatedly assured that Robert did not have epilepsy and in addition, we had never heard of SUDEP.

The team here at Epilepsy Ireland have been inspired by the efforts of so many over the course of this pandemic and during Rose Week in order to support the work that we do on the behalf of people with epilepsy and their families.

We’ve seen our supporters literally climb mountains, run marathons and as we type this - aim to complete 40,000 push-ups -  in order to raise vital funds for our work.

Epilepsy Ireland has received confirmation that we have been awarded €177,838 under the Government's COVID-19 Stability Fund for Community & Voluntary organisations

The fund was established by the Government in order to provide a once-off cash injection to non-profit and community organisations who continue to provide vital services throughout the pandemic.