On Saturday 1st November, our colleagues in Tuberous Sclerosis Complex Ireland will be hosting their conference for people who live with tuberous sclerosis, their carers and families at Trinity College Dublin.
Tuberous Sclerosis Complex (TSC) is a rare genetic condition which affects 1 in 6000 people. According to Tuberous Sclerosis Complex Ireland, there are an estimated 500-600 people with TSC in Ireland. It causes tumours or growths in the organs including the brain, eyes, kidney, lungs, skin, teeth and heart. Epilepsy is the most common medical problem in TSC affecting 90% of cases.
Tuberous Sclerosis Complex Ireland is dedicated to providing information and support those affected by the condition and raising awareness about tuberous sclerosis. Epilepsy Ireland work closely with Tuberous Sclerosis Complex Ireland on several shared goals and through our services, support many people living with Tuberous Sclerosis, as well as their families.
The full list of speakers for the Tuberous Sclerosis Complex Ireland conference is outlined below, featuring a range of fantastic speakers and experts.
- Professor Petrus J de Vries - University of Cape Town, South Africa
- Professor Cormac McCarthy - UCD School of Medicine
- Professor Andrew Green - UCD School of Medicine and Medical Science
- Dr (John) Chris Kingswood - Sussex University Hospital
- Professor Colm P Doherty - St James's Hospital
- Professor Finbarr O'Callaghan - University College London
- Dr Damien Ferguson - St James's Hospital
We wish our colleagues in TSC Ireland well with the final preparations for their conference!
WHO?
This event is being hosted by TSC Ireland and is for people living with tuberous sclerosis, and families and carers supporting loved ones living with tuberous sclerosis.
WHEN?
Saturday, November 1st, 10:00am - 4:00pm
WHERE?
Robert Emmet Theatre, Arts Building, Trinity College Dublin, Dublin 2 (D02 XH97)
REGISTRATION
To register for this event, you can do so by filling out the Google Forms page via the button below
If you have any questions regarding this event, you can contact Tuberous Sclerosis Complex Ireland by emailing info@tscireland.org
FURTHER INFORMATION
- You can learn more information about Tuberous Sclerosis Complex Ireland by visiting the website of our colleagues in Tuberous Sclerosis Complex Ireland .
- Further information on TSC and other genetic epilepsies can be found by visiting the 'Rare Epilepsy Disorders' page on our website.
- If you need any information or support regarding epilepsy, contact your local Community Resource Officer - you can find their details by visiting the 'Our Local Service' section of our website.