The below are a collection of common questions that were put to us throughout the pandemic which we have kept on our site for information purposes.
Are people with epilepsy more likely to contract the virus as a result of having epilepsy?
There is currently no data to suggest that people with epilepsy are more at a higher risk of contracting the virus compared to the public. Through our membership of the International Bureau of Epilepsy COVID-19 taskforce, we are regularly in communication with experts and organisations around the globe about this question and will continue to monitor this.
Will people with epilepsy be more adversely affected if they contract the virus?
There is no data to suggest that you will be more adversely affected by the virus due to having epilepsy.
However, with that in mind, we have all heard now of personal testimonies of those who have contracted the virus and the varying ways they have been affected. Much like epilepsy, the virus’ presentation from person to person – and the impact it has on them – varies, so we must continue to do everything we can to ensure we are all following public health guidelines.
It is also important to note that the virus could cause a fever which in turn can be a seizure trigger for people with epilepsy and lead to seizures for some people. Therefore, it is important to bear in mind that while the virus itself may not more adversely affect a person with epilepsy compared to the public, it could have an impact on the existing condition – i.e, epilepsy. This is why it is important that you continue to follow public health advice.
Should people with epilepsy wear a mask?
Visit the 'Facemasks & Epilepsy' section within this COVID-19 section of our website.
Should people with epilepsy get vaccinated?
Visit the 'Covid-19 Vaccinations & Epilepsy' section within this COVID-19 section of our website.
Do you have any tips on self-isolating?
If you have regular seizures, particularly tonic-clonic, or any that could cause harm, it would be advisable to always inform family, or carers that you are self-isolating so that you can be checked on. You should also ensure you have all your medication prescriptions in supply and up to date. Make sure to have your phone to hand, along with a charger and if possible arrange for calls to a family member/ carer/ friend at pre-arranged intervals e.g. on the hour.
Related to the need to self-isolate and also owing to COVID19 in general, we are receiving increased queries regarding seizure alarms & monitors. If you are thinking of purchasing an alarm, you can get further information by downloading our Safety & Seizures booklet for further information.
I have heard that people with respiratory problems associated with COVID19 have been recommended to lie prone (on their stomach) to improve air entry to the lungs – what do we recommend for people with epilepsy who develop COVID19?
Recent evidence has suggested improved breathing in people with COVID19 when placed on their front (prone position). This has caused some concern for some people with epilepsy as sleeping in a prone position has previously been associated with Sudden Unexplained death in Epilepsy (SUDEP). For this reason, advice has been given not to sleep in the prone position. The use of anti-suffocation pillows has also been advocated.
People with both epilepsy and serious breathing difficulty due to COVID-19 are likely to be hospitalised, where medical professionals can provide guidance on sleeping position, as well as ongoing supervision. In a non-hospital environment, a risk/benefit analysis has to be taken into account. Therefore, advice is likely to depend on the severity of the COVID19 disease, the type and severity of epilepsy and other considerations. You should seek advice from your own medical professional before adjusting your sleeping position at home.