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New study seeking feedback from those with experience of rare epilepsies

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If you are living with a rare form of epilepsy, or supporting a loved one with a rare epilepsy, a new national research project wants to hear from you.

The project is funded by the Health Research Board and is a collaboration between University College Dublin, Rare Diseases Europe, and our colleagues in Rare Diseases Ireland.

Turning IGAP into Action

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We were delighted to recently welcome over 60 representatives from across the Irish epilepsy community and the Minister for Health to a special event focused on the Intersectoral Global Action Plan on Epilepsy and Other Neurological Disorders (IGAP).

IEL Expert Day - Ciara McConnell wins writing competition!

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In advance of their annual Expert Day, the Irish Epilepsy League ran a competition for health science/medical students to write a creative essay/poem in prose about epilepsy.

The Irish Epilepsy League are the Irish chapter of the International League Against Epilepsy. Their membership comprises of epilepsy healthcare professionals and the epilepsy research and scientific community working in Ireland.

SUDEP Action Day 2026

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Learn about Sudden Unexpected Death in Epilepsy, and what can be done to reduce the risk.

EI comment on recent media reports

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With reference to this morning's media reports, Epilepsy Ireland does not comment on the health circumstances of any individual or on specific cases.

More than 45,000 people in Ireland are living with epilepsy. Epilepsy is a neurological condition that affects people in different ways, and experiences can vary significantly from person to person.

Epilepsy Ireland turns 60!

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We were honoured to receive a message from Uachtarán na hÉireann Catherine Connolly to mark our 60th anniversary.

From Survey to Thesis: Exploring psychological wellbeing in people living with epilepsy

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Regular visitor to our social media channels and website might remember Lia Hipwell! 

Earlier this year, Lia sought support for her research around the psychological wellbeing in people living with epilepsy by asking Epilepsy Ireland to disseminate her research request as she wanted as much input from epilepsy community as possible. 

Epilepsy Ireland Names 2026 Volunteers of the Year!

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At our recent National Conference in Cork, we were delighted to name our 2026 Volunteers of the Year and recognise them for their outstanding commitment to supporting our work.

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