SUDEP Action Day is a day in which we raise awareness of Sudden Unexpected Death in Epilepsy. This is a rare but devastating aspect of epilepsy and while there is a lot we still do not know about SUDEP, there are factors which we know contribute to increased SUDEP risk.
SUDEP Action Day aims to educate the epilepsy community about SUDEP so they are aware of these risks and discuss them with their medical team. The day also represents an opportunity to remember those who have sadly passed away due to SUDEP or an epilepsy-related death. As part of the day, we share stories of those who have sadly been bereaved by SUDEP to help educate others. You can read some of the stories we have previously shared by visiting the 'SUDEP' section of our website. If you have been bereaved by SUDEP and would like to share your experience as part of our activities for the day, please contact our Advocacy & Communications Manager Paddy McGeoghegan by emailing pmcgeoghegan@epilepsy.ie.
To learn more about SUDEP, visit the 'SUDEP' section and please join with us on the day to remember those who have been lost and to educate the entire epilepsy community about SUDEP.