Epilepsy Ireland is seeking feedback from women with epilepsy who are currently taking the anti-seizure medication, Sodium Valproate (Epilim).
The survey is a repeat of a similar survey that we issued in 2019, aimed at measuring patients’ experience of the risk-reduction measures that have been put in place around the prescribing and dispensing of this medication.
If you are a woman with epilepsy, or a family member of a women with epilepsy, you might be interested in helping a study which we believe may have the potential to make a huge impact on the future care of women with epilepsy in Ireland, who are planning pregnancies in the future.
To date, no study has examined the health information needs of women with epilepsy and their families from preconception through to postpartum in Ireland. The EPIKNOW study will change that.
People with epilepsy and their families may be able to provide invaluable feedback to this new survey from the HSE on the subject of transition between services.
The Department of Health are seeking to appoint a Chairperson of the long-awaited Sodium Valproate inquiry via the Public Appointments Service.
Our colleagues in the HRCI have launched their General Election Manifesto. Find out more about their calls.
In the Dáil recently, the upcoming changes to the Free Travel scheme were discussed.
As a result of a longstanding campaign by Epilepsy Ireland, from July, people who are medically unfit to drive for at least a year will be able to apply for the benefit. The changes being made will remove the barrier of having to be on a qualifying payment in order to access Free Travel.
We're looking forward to beginning work on a new project with our colleagues in FutureNeuro and the Neurological Alliance of Ireland!
Please support our biggest fundraising day of the year!
We were pleased to recently have our Triple Lock status renewed - find out more about what 'Triple Lock' means.
Please support the new Patients Deserve Better campaign.