News

Study identifies risk of malformations associated with prenatal exposure to 10 epilepsy drugs

Researchers from the French National Health Insurance (CNAM) have just published a nationwide study of pregnancies ending between January 2011 and March 2015 to examine links between exposure to monotherapy with 10 different AEDs during the first two months of pregnancy and the risk of 23 specific major congenital malformations (MCMs). The study is published in the journal Neurology.

Study finds that lower dose of cannabidiol is as effective as higher dose in Dravet Syndrome.

A Phase 3 study presented at the American Academy of Neurology's Annual Meeting in Philadelphia has provided new evidence of the benefits of pharmaceutical-grade cannabidiol (Epidiolex) in treating Dravet Syndrome. Dravet Syndrome is an infantile onset developmental and epileptic encephalopathy associated with drug-resistant seizures. 

Update on Frisium Supply

Epilepsy Ireland has been made aware of reports of difficulties with the supply of Frisium (Clobazam) 10 mg tablets recently.  We have contacted the Irish Pharmaceutical Union and also the Health Products Regulation Authority to clarify what the position is currently.

There had been a delay with production of Frisium which led to stock being made available on a case by case basis in Ireland by the manufacturers Sanofi.