As many of our members and supporters will be aware, we have been working closely with our colleagues in OACS Ireland (Organisation for Anti-Convulsant Syndrome) for the last number of years regarding their ongoing work to support families affected by Sodium Valproate (Epilim).
Epilepsy Ireland and OACS Ireland were scheduled to appear before the Oireachtas Health Committee on January 29th to discuss ongoing matters of concern regarding information surrounding Sodium Valproate and supports for affected families however with the dissolution of the Dáil, this had to be cancelled.
It is crucial that when the 33rd Dáil is elected and the new Oireachtas Health Committee is convened, that we alongside OACS are urgently afforded the opportunity to discuss this ongoing matter with the Deputies & Senators elected to the new Health Committee.
Epilepsy Ireland have acknowledged the need for the 12 recommendations on sodium valproate to be implemented as part of our General Election priorities however, as the organisation who are advocating solely on the behalf of affected families, OACS have also published their General Election Manifesto which can be found here.
We will continue to work with OACS Ireland on this most important matter and indeed, all members of the 33rd Dáil to seek progress on this.
Furthermore, a reminder that we have a survey currently ongoing regarding experiences of women & girls with epilepsy who may be prescribed Epilim/ have been on Epilim in the past. This is vital to our ongoing work on this matter and if you have not done so already, please take the time to fill this out or indeed, bring to the attention of others who you may know has been on the drug or is currently prescribed same.