National Conference on the Consequences of Sodium Valproate (Epilim): 50 years on

Friday, March 22, 2019

9.30am – 5pm

For patients & families affected by valproate exposure, healthcare professionals and policy makers.

Stanley Quek Theatre
Biomedical Sciences Institute | Trinity College Dublin
152-160 Pearse Street | Dublin 2. Click here for directions.

Sodium Valproate (Epilim) is a medication used to treat epilepsy and bipolar disorder. The European Medicines Agency has restricted its use in women due to the increased risk of disabilities in children exposed to Valproate in the womb (Foetal Valproate Syndrome).

This conference will address the key issues today facing families, healthcare professionals and policy makers.

Full Agenda

10.00
Welcome and Introduction
Dr Colm Henry, HSE Chief Clinical Officer              

10.15                    
OACS Ireland and the Valproate campaign in Ireland
Karen Keely, Chairperson, OACS Ireland

10.30               
The History and Pharmacology of Sodium Valproate
Dr Jeff Aronson, Clinical Pharmacologist, Centre for Evidence Based Medicine, Nuffield Department of Primary Care Health Sciences, Oxford

11.05                    
Sodium Valproate: Who knew what and when?
Prof. Carl Heneghan, Professor of Evidence-Based Medicine, Nuffield Department of Primary Care Health Sciences, Oxford

11.40
Coffee Break                     

11.55                    
How do we know what we know? A research perspective on neurodevelopmental outcomes associated with prenatal antiepileptic medication exposure.
Prof. Amanda Wood, Professor of Developmental Neuropsychology, Aston University, Birmingham

12.30
Foetal Valproate Syndrome:  Diagnosis, Controversies, and Management
Dr Peter Turnpenny, Clinical Geneticist, Royal Devon & Exeter Hospital, UK          

1.05
Foetal Valproate Syndrome – the Irish Experience
Prof. Andrew Green, Consultant Clinical Geneticist, Our Lady's Children's Hospital, Crumlin            

1.45          
Lunch

2.45
Living with Foetal Valproate Syndrome - Panel discussion            
Lee Keely, Person with FVS
Jo Cozens, Parent & Chairperson, OACS UK
Deborah Larkin, Parent
Nikki Memery, Parent
Elaine Hurley, Parent
Dr Colin Doherty, Facilitator                                                      

3.30
Sodium Valproate - The Irish Response
Dr Colin Doherty, Consultant Neurologist & Clinical Lead, National Clinical Programme for Epilepsy
Dr Almath Spooner, Pharmacovigilance and Risk Management Lead, HPRA
Dr Ronan Glynn, Deputy Chief Medical Officer, Department of Health
Cora Flynn, Nurse Lead, National Clinical Programme for Epilepsy              
Prof. Andrew Green, Consultant Clinical Geneticist, Our Lady's Children's Hospital, Crumlin
Des O'Flynn, Head of Service Primary Care, HSE CHO 9

4.50
Closing Remarks
Geoff Day, OACS Ireland               

Bookings:

Book your place free of charge at:

valproate.eventbrite.ie

For further information, please contact:

Sabrina Doyle, HSE:  01 6352508 | sabrina.doyle@hse.ie