How we raise and use our funds

Updated: September 2017

Epilepsy Ireland is dedicated to meeting the needs of people with epilepsy and their families. We aim to do this by providing a range of support & information services; offering training & education programmes for both people with epilepsy and health professionals; by improving public understanding of epilepsy; advocating on behalf of those affected by epilepsy and by supporting Irish research to help better understand and treat the condition.

We are a registered charity both with the Charities Section of the Revenue Commissioners (CHY 6170) and the Charities Regulatory Authority (No. 20010553).

We employ skilled, experienced staff to deliver on our objectives in these areas, supported by professional expertise in fundraising and administration. In 2016, as per the audited accounts for the year (the latest currently available), the number of employees was 27, including 9 in administration and fundraising.

We are grateful for all funding we receive to enable us to meet our objectives and we recognise that public trust in our work and performance is essential. We are committed to providing a high level of accountability and transparency about how we spend our funds.

In 2016, our total income was €1,764,275, of which €745,515 (42% of overall) was in Section 39 grants from the Health Service Executive. This statutory funding is operated under nine regional service level agreements and we provide detailed annual reports to the HSE for each of these agreements.

We require additional funding from other sources in order to continue to provide our services and in 2016, €484,080 was raised through donations, memberships and legacies and €218,959 was raised through other trading activities that included raffles, lotteries, campaigns, appeals and fundraising events. Income generating services including training accounted for €127,051 in income, while non-HSE grants including those in relation to Training For Success; the Health Research Board and National Lottery amounted to €169,115. Investment & other income was €19,555. (see chart below)

Our total expenditure in 2016 was €1,692, 615. Of every €1 we spent in 2015, 75c went to direct charitable objectives (72c in 2015), which consists of information & support; training & education; awareness raising; advocacy and research.

15c was spent on fundraising (17c in 2015) and 10c was spent on other expenditure (including administration, governance, maintenance, depreciation – 12c in 2015). It is our belief that we extract maximum value, for people with epilepsy, from every euro that we spend. (see charts below)

The nature of our work, providing personalised support services to people with epilepsy and their families is highly dependent on direct staffing resources, and in 2015, 59% of all expenditure was pay-related (54% 2015).

Epilepsy Ireland employs 27 people and the average salary paid is less than €32,000. No additional payments or bonuses of any kind are paid to Epilepsy Ireland employees apart from employer pension fund contributions (€48,177 in 2016). In 2009 staff took a 3% pay cut across the board which was still in force at the end of 2016.

From 2016, we are reporting on all salaries over €60,000 in bands of €10,000. In 2016, one employee earned between €80,000 and €90,000; no employees earned between €70,000 and €80,000; one employee earned between €60,000 and €70,000 and there were no other salaries in excess of €60,000.

Our Board members and members of our sub-committees are volunteers who donate freely their time, skills and experience. None of our directors receive any remuneration for their service. Details of all board members can be found in the 2016 annual report and here.

Epilepsy Ireland publishes audited accounts and an annual report each year, both of which can be downloaded here. From 2014 onwards, Epilepsy Ireland's financial statements are prepared in accordance with the Statement of Recommended Practice (SORP) for charities and the FRS 102 accounting standard.

If you have any questions on our finances, please do not hesitate to contact us at info@epilepsy.ie.