How can grandparents get more involved?

People of earlier generations are more likely to have misunderstandings and stereotypes regarding epilepsy. They may be set in their ideas and opinions of the disorder and may be unwilling to accept it in the way parents feel they should. You should try to explain to grandparents what epilepsy is so that they can better understand it. You may even want to invite grandparents to attend one of your child's medical appointments so that they can meet the doctors and learn more. Grandparents may be afraid to take care of the grandchild if they feel that they won't be able to manage the child should he/she have a seizure.

While this is understandable, there are things that parents can do to help grandparents feel more confident in their abilities to help the child having a seizure. Parents should explain to them what they will need to do if the child has a seizure. If the grandparents spend time with the parents and witness them during a seizure, they will probably be more confident in handling a seizure themselves. Of course, this may not be possible, especially if the child's seizures are very infrequent. Still, a good description of what the child's seizures look like will let grandparents know what to expect and will help prepare them to deal with a seizure should one occur.