The Campaign

'The Campaign' image

Leinster House Briefing
On 22nd November 2012, Epilepsy Ireland held a briefing for all TDs and Senators in Leinster House to outline our key concerns about the failure of the Bill to exclude AEDs from generic substitution. Over 30 TDs and Senators attended the briefing by Prof Norman Delanty, Director of the Epilepsy Programme, Beaumont Hospital; Mike Glynn, Epilepsy Ireland CEO and Cathy Grieve, journalist & person with epilepsy.

Epilepsy Amendments
Epilepsy Ireland prepared a number of amendments to the Bill that would have ensured the safety and wellbeing of people with epilepsy. The amendments were distributed to all TDs and Senators along with various explanatory materials explaining the issues around substitution, including a list of 12 key points summarising our argument. Our amendments were proposed by Sinn Fein, Fianna Fail and by a number of Independent TDs during the Committee and Report stages of the debate but all amendments were defeated by the government.

Meeting with Minister Alex White
In January, we met with Minister White. The Minister insisted that the Bill was intended only as a framework for generic substitution and that it should not make any judgements as to whether certain classes of drugs should be exempted or not. This has remained the default position of the Minister and his department ever since.

Presentation to the Joint Oireachtas Committee on Health
On March 14th, Mike Glynn (Epilepsy Ireland CEO), Peter Murphy (Deputy CEO) and Dr Peter Widdess Walsh (Epileptologist and Consultant Neurologist) presented on our concerns to the Joint Oireachtas Committee on Health.

Parliamentary Questions
Hundreds of Parliamentary Questions have been tabled for the Minister's response since our campaign began last autumn.

Media Coverage
The campaign has received considerable coverage in the media:

 Press Releases