16-11-2010 | Louth family raise over €7,000 for Brainwave

Brainwave would like to extend our warmest of thanks to the Mulrey family from Dundalk, Co Louth who this year embarked on a major fundraising campaign to mark the 10th anniversary of the death of their son as a result of SUDEP.

Larry Snr and Deidre Mulrey, lost their son, Larry Jr in 2000 at the age of 25 after he had a seizure in his sleep.

The family decided to devote this year of Larry's 10th anniversary to fundraising for Brainwave in his memory to help raise awareness of issues for people with epilepsy, especially young people.

Larry Snr took part in a local 10k run in May while other friends and family members took part in the women's mini-marathon and the Belfast marathon. The family also raised over €1,500 by organising a world cup prediction competition this summer.

The fundraising culminated in a live music fundraiser to remember Larry Jr at the Lisdoo Arms on September 25th when family members presented Brainwave's Ina Murphy with the funds they had raised.

None of the family were aware of Sudden Unexpected Death in Epilepsy until Larry Jr passed away and since then they have become strong advocates of the need for greater epilepsy awareness, particularly in relation to the risk of SUDEP. As part of their campaign, Larry & Deirdre also took part in a radio interview on LMFM with Brainwave's Noreen O'Donnell to discuss SUDEP.

Larry Jr developed epilepsy in his youth, causing him to experience severe seizures. Although he did become seizure free for a number of years, his seizures returned and he died as a result of SUDEP just four days after his 25th birthday in 2000.

Brainwave would like to thank Larry Snr, Deirdre, Seamus Bailey, Tina Garreth and everybody else who contributed to this fantastic fundraising and awareness campaign.

Below - Tina Garreth, Larry Mulrey Snr, Ina Murphy (Brainwave) and Deirdre Mulrey make a presentation to Brainwave

 

 

 

 

 

 

 

 

 

 

Below - Larry Sr, Deirdre, LMFM's Gerry Kelly and Brainwave's Noreen O'Donnell after the recent interview on the radio station about SUDEP and the Mulrey's fundraising and awareness work