19-05-2009 | Prevalence of Epilepsy in Ireland data launch

'19-05-2009 | Prevalence of Epilepsy in Ireland data launch' image

The Prevalence of Epilepsy in Ireland
Research data launch

Buswells Hotel, Molesworth Street, Dublin 2
Tuesday May 19th
11.30am - 12.45pm

Christine LInehan, Senior Researcher, UCD Centre for Disability Studies, where the study was conducted will present the findings and conclusions from the prevalence study, the first of its kind ever carried out in Ireland to officially identify the number of people with epilepsy in the country.

Annette Russell, former Assistant Director, Clinical Specialism at the National Society for Epilepsy in the UK will speak about her own experiences in epilepsy nursing care, what we can learn for the UK system and how the appointment of additional Epilepsy Specialist Nurses in Ireland could have a major impact in improving the quality of life of people with epilepsy.

If you would like to attend this important event, please contact Brainwave Head Office at 4557500 to book your place.

About the Prevalence Study

Until now, no-one really knew how many people there are in Ireland with epilepsy. When asked for figures by government or the HSE, Brainwave used approximate figures of 30,000 - 40,000, based on studies conducted in other countries.

To get a better picture, Brainwave commissioned the UCD Centre for Disability Studies to undertake a nationwide study to determine the prevalence of epilepsy in Ireland. The research was led by Patricia Noonan Walsh and Christine Linehan and guided by an Advisory Committee consisting of experts in epilepsy, epidemiology and neurology. Five different sources of data were examined - primary care data, specialist care data, prescription drug data, Hospital Inpatient Enquiry System data and self report data.

The findings of the research have now been compiled and the results will be officially launched during National Epilepsy Week. Armed with relevant figures rather than best-guesses, Brainwave will continue to campaign for better services for people with epilepsy in Ireland, starting with a presentation to TDs and Senators in Leinster House directly after the launch.

A summary of the findings will be published on this site during National Epilepsy Week