Epilepsy Ireland News

26-07-2017| Welcome to a new website: “Talking about Epilepsy: A Resource for Parents and Children”

26 July 2017
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'26-07-2017| Welcome to a new website: “Talking about Epilepsy: A Resource for Parents and Children”' image

Dr Veronica Lambert (DCU Deputy Head of School of Nursing and Human Sciences) discusses a new website aimed at helping parents and children affected by epilepsy.

The purpose of the "Talking about Epilepsy" website is to provide information for children living with epilepsy and their parents when thinking about talking to or telling other people about epilepsy. The website brings together accessible information in different formats about the previous experiences of children of different ages living with epilepsy and their parents about talking about epilepsy. The content of this website was informed by the "Talking about Epilepsy" research project which explored how families living with childhood epilepsy communicate about epilepsy. The website explains some key messages learnt from this research and includes child and parent stories about talking about epilepsy with other people, commentaries from an epileptologist, clinical nurse specialist, parent and a teacher, and some frequently asked questions that you might find useful.

There is also the opportunity to tell the website development team what you think about the website and the team would love to hear your feedback. This research, and the development of this "Talking about Epilepsy" website, was led by a team of researchers at Dublin City University in collaboration with Temple Street Children's University Hospital and Epilepsy Ireland. Throughout the development of the website the team engaged with children, parents and clinicians to inform the website design including content, format of presentation and website navigation. The development of this website was enabled by funded received through the Health Research Board Knowledge Dissemination and Exchange Scheme.

To look around the website visit the following link https://www.talkingaboutepilepsy.ie/

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