Epilepsy Ireland News

29-02-2016 | New NAI report on Rare Neurological Conditions launched on Rare Disease Day

29 February 2016
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'29-02-2016 | New NAI report on Rare Neurological Conditions launched on Rare Disease Day' image

The Neurological Alliance of Ireland  has launched the report of their half day conference in January on Rare Neurological Conditions to coincide with International Rare Diseases day today.

The conference on January 29th brought together the leads of both the rare disease and neurology clinical programmes together with other stakeholders to explore some of the challenges and potential solutions to improving understanding of and response to the needs of people with rare neurological conditions in Ireland.

The aim of the event was to inform the work of the NAI in relation to advocating for the needs of people with rare neurological conditions and the key learning for the umbrella is summarised in the foreword and conclusions of the report.

The full report is available to download at http://www.nai.ie/go/resources/nai_documents/report-of-nai-conference-on-rare-neurological-conditions

 

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