04-10-2017 | Epilepsy Ireland supports SUDEP Action Day

04 October 2017
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Epilepsy Ireland is pleased to support SUDEP Action Day (October 23rd ) an annual event aimed at raising awareness of Sudden Unexpected Death in Epilepsy.

SUDEP is defined as "sudden unexpected, witnessed or unwitnessed, non-traumatic and non-drowning death in an individual with epilepsy, with or without evidence of a seizure and excluding documented status epilepticus where post-mortem examination does not reveal a cause for death.

This awareness day is the brainchild of SUDEP Action and is part of the call for an openness campaign that has attracted global support. On the day itself Epilepsy Ireland will be conducting a national survey to open a discussion about SUDEP among people with epilepsy and medical professionals.

The theme is: #Why

Join SUDEP Action Day 2017 to shed light on the challenges and WHY questions that SUDEP raises, to see what answers are already out there, the action being taken to solve these questions and what more needs to be done.

On Monday 23 October 2017, Epilepsy Ireland and SUDEP Action wants your help to raise these 'why' questions:

  • Why don't more people know about SUDEP?
  • Why is talking about SUDEP important?
  • Why should people with epilepsy and their clinicians know about SUDEP risks?
  • Why do you support SUDEP Action to help tackle SUDEP and Epilepsy deaths?
  • Why have you taken part in fundraising/awareness events to help shine a light on SUDEP and epilepsy-related deaths?
  • Why is it important to you that others get involved in SUDEP Action Day 2017?

Take whichever questions you like and use that as your talking point to get involved using the hashtags #SUDEPACTIONDAY2017 and #WHY on social media. Why not change your Facebook or Twitter cover image to show your support?

SUDEP Resources:

SUDEP in Ireland infographic

SUDEP Action Day website: www.sudepactionday.org

Epilepsy.ie SUDEP section

Epilepsy Deaths Register for Ireland website

Epilepsy Ireland Safety and Seizures Booklet

Be Safe Reduce Risk booklet (pdf)

SUDEP Action website

Contact us at 01 4557500/ info@epilepsy.ie or your local EI office if you would like to know more about SUDEP and managing your risks.

Attached Documents

PDF icon Epilepsy Ireland Safety and Seizures Booklet (Safety_and_Seizures.pdf | 2.94 MB)
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