06 March 2009
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International Epilepsy Organisations

International Bureau for Epilepsy (IBE)
An umbrella body for epilepsy organisations all over the world. Links to member organisations are available.

International League Against Epilepsy (ILAE)
The International League Against Epilepsy (ILAE) is the world's preeminent association of physicians and other health professionals working towards a world where no persons' life is limited by epilepsy.

Global Campaign Against Epilepsy
The website contains a vast array of information on the campaign, including: Background and history of the campaign. Information and reports on Demonstration Projects and other campaign activities.

Irish Epilepsy Websites

The Republic of Ireland Epilepsy and Pregnancy Register.
Freephone 1800 320 820 to register your pregnancy, to get advice and to have your questions answered in confidence.
The Epilepsy Care Foundation was founded in 2009, and its aims include improving the level of clinical care available to people with epilepsy, and to create an awareness & understanding of epilepsy amongst the general public. Epilepsy Clinic
A special Epilepsy Clinic developed by and Epilepsy Ireland,

International Epilepsy Websites

Epilepsy Action (UK)
A very good english language site by IBE's UK member.

Epilepsy Foundation
A very good english language site by IBE's American member.

Epilepsy Bereaved
The JEC member which works for all bereaved by epilepsy and to prevent epilepsy deaths.

Epilepsy Canada
A very good english language site by IBE's Canadian member.
A good general epilepsy information site.

Epilepsy Youth in Europe
European Youth Site - Contains a chat room where people with epilepsy can meet to discuss various issues

Irish Neurological Sites

Neurological Alliance of Ireland
The NAI is an umbrella organisation representing the collective goals of many individual neurological charities. Site has links to all member organisations.

The Irish Institute of Clinical Neuroscience (IICN)
IICN aims to promote the academic clinical neurosciences on the island of Ireland.

Dublin Neurological Institute
The Dublin Neurological Institute is part of The Mater Hospital, working in close collaboration with the recently established, Dublin Health Academic Centre

Dublin Brain Bank
The aim of the Dublin Brain Bank is to facilitate an archive of brain tissue, which will help clinical and neuroscience researchers uncover potential cures for neurologically devastating diseases.

Other Organisations

Support for people with depression, bipolar disorder, postnatal depression or suicidal thoughts.

Disability Federation of Ireland
The Disability Federation of Ireland (DFI) is the representative body for organisations working with people with a disability in Ireland.

The Equality Authority
The Equality Authority provides a free, confidential advisory service to employers, service providers, employees, trade unions and the legal profession on the operation of the Employment Equality legislation.

Citizens Information
Formerly Comhairle, Citizens Information provides information on entitlements and social services.
The national employment agency

National Disability Authority
The NDA monitors compliance with the recommendations of the commission on the Status of People with Disabilities serves as a national focal point to co-ordinate disability policies, monitor standards and commission research.

Employer Disability Information service
Confidential advice and information for employers on the employment of people with disabilities

Anam Cara
Anam Cara Parent Bereavement Support was formed to address the needs of bereaved parents and families. Anam Cara has work with Brainwave to provide support to people who have lost a loved one through SUDEP.

The Acquired brain injury Advocacy association


Other Useful Sites


Birth Injury
Birth injury is a health problem that an infant is born with that is, in most cases, completely preventable. While birth injuries can be caused by a variety of reasons, Birth Injury Center was created to raise awareness and shine a light on this important issue. Our easy to navigate and comprehensive website is dedicated to promoting awareness of common birth injuries and their causes. Our mission is to help users find helpful information on devastating birth injuries and their symptoms, causes, and treatment options.
Our mission is to provide the public with accurate and up to date information on the many aspects of cerebral palsy and other birth injury complications. Our team strives to maintain a comprehensive free resource so those interested or concerned about their children can take actions to protect them. If you would like to get in touch with our team we can be reached at

Cerebral Palsy Guidance was created to provide answers and assistance to parents of a child with cerebral palsy. Our goal is to reach as many members of the cerebral palsy community as possible, building up a network of support, as well as providing necessary assistance.
We cover cerebral palsy from all angles–from symptoms, causes, and treatment, to daily living information, such as communication and transitioning to adulthood articles.
Our information is provided by expert writers and is thoroughly researched and cited.

Further links to information regarding Cerebral Palsy and Epilepsy which might be of interest:

Cerebral Palsy Group

Cerebral Palsy Group is a national organization that was created so that it may serve the individuals and families who have been diagnosed with cerebral palsy. We are here to provide information and support so that we may help provide resources and education to those affected by CP. Vitality Medical

Cerebral Palsy and Epilepsy

Cerebral Palsy Guide provides information, support and resources for families affected by cerebral palsy and epilepsy. Almost half of children who are diagnosed with cerebral palsy will also have some form of epilepsy. We offer a detailed explanation of how these conditions coexist, as well as the best ways to treat CP and epilepsy simultaneously.
Leiomyosaracoma, in short, sarcoma, is a type of malignant tumor that affects supportive tissues of the body. Our site strives to provide the most current and accurate information and news on causes and preventitive treatments for Leiomyosarcoma.

We Connect Now
Connecting & integrating college students with disabilities as a virtual community with particular emphasis on access to higher education and employment.

(Bandon Area Special Children) is a fun club organised by a group of parents of children and adults with intellectual disabilities in the Bandon, Kinsale and surrounding areas.

Non-Epileptic Attacks
Probably the most comprehensive site about NEAD on the internet. This UK site contains lots of information, self-help materials and contacts.

UK charity DIPEx has launched the new website for young people with epilepsy.

About Kids Health
An online resource fom the Hospital for Sick Children, Toronto, to assist people in explaining epilepsy to young children.

Special Needs Family Fun
Special Needs Family Fun offers family fun and special needs resources to enhance fun and quality of family life for families with disabilities.
The comprehensive guide to health for Irish users. Ireland's only live health news and feature service.

Manufacturers of the Vagus Nerve Stimulator. Details of the treatment can be downloaded from their web site.

Tuberous Sclerosis Complex Ireland(TSC)

Support group for parents' families and individuals with TSC, to raise the profile of the condition and to keep abreast with all relevant medical advances relevant to the condition.

Organisation for Anti-Convulsive Syndrome

OACS is a charity and support group for those children born with Fetal Anti Convulsant Syndrome and the families that love and care for them.

Head Trauma & Epilepsy

Web article on head trauma and the development of epilepsy.

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