06 March 2009
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International Epilepsy Organisations

International Bureau for Epilepsy (IBE)
An umbrella body for epilepsy organisations all over the world. Links to member organisations are available.

Joint Epilepsy Council of U.K. and Ireland (JEC)
An umbrella body for organisations in the United Kingdom & Ireland working for people with epilepsy. Links to each organisation available.

International League Against Epilepsy (ILAE)
The International League Against Epilepsy (ILAE) is the world's preeminent association of physicians and other health professionals working towards a world where no persons' life is limited by epilepsy.

Global Campaign Against Epilepsy
The website contains a vast array of information on the campaign, including: Background and history of the campaign. Information and reports on Demonstration Projects and other campaign activities.

Irish Epilepsy Websites

The Republic of Ireland Epilepsy and Pregnancy Register.
Freephone 1800 320 820 to register your pregnancy, to get advice and to have your questions answered in confidence.
The Epilepsy Care Foundation was founded in 2009, and its aims include improving the level of clinical care available to people with epilepsy, and to create an awareness & understanding of epilepsy amongst the general public. Epilepsy Clinic
A special Epilepsy Clinic developed by and Epilepsy Ireland,

International Epilepsy Websites

Epilepsy Action (UK)
A very good english language site by IBE's UK member.

Epilepsy Foundation
A very good english language site by IBE's American member.

Epilepsy Bereaved
The JEC member which works for all bereaved by epilepsy and to prevent epilepsy deaths.

Epilepsy Canada
A very good english language site by IBE's Canadian member.
A good general epilepsy information site.

Epilepsy Youth in Europe
European Youth Site - Contains a chat room where people with epilepsy can meet to discuss various issues

Irish Neurological Sites

Neurological Alliance of Ireland
The NAI is an umbrella organisation representing the collective goals of many individual neurological charities. Site has links to all member organisations.

The Irish Institute of Clinical Neuroscience (IICN)
IICN aims to promote the academic clinical neurosciences on the island of Ireland.

Dublin Neurological Institute
The Dublin Neurological Institute is part of The Mater Hospital, working in close collaboration with the recently established, Dublin Health Academic Centre

Dublin Brain Bank
The aim of the Dublin Brain Bank is to facilitate an archive of brain tissue, which will help clinical and neuroscience researchers uncover potential cures for neurologically devastating diseases.

Other Organisations

Support for people with depression, bipolar disorder, postnatal depression or suicidal thoughts.

Disability Federation of Ireland
The Disability Federation of Ireland (DFI) is the representative body for organisations working with people with a disability in Ireland.

The Equality Authority
The Equality Authority provides a free, confidential advisory service to employers, service providers, employees, trade unions and the legal profession on the operation of the Employment Equality legislation.

Citizens Information
Formerly Comhairle, Citizens Information provides information on entitlements and social services.
The national employment agency

National Disability Authority
The NDA monitors compliance with the recommendations of the commission on the Status of People with Disabilities serves as a national focal point to co-ordinate disability policies, monitor standards and commission research.

Anam Cara
Anam Cara Parent Bereavement Support was formed to address the needs of bereaved parents and families. Anam Cara has work with Brainwave to provide support to people who have lost a loved one through SUDEP.

The Acquired brain injury Advocacy association

Other Useful Sites
Leiomyosaracoma, in short, sarcoma, is a type of malignant tumor that affects supportive tissues of the body. Our site strives to provide the most current and accurate information and news on causes and preventitive treatments for Leiomyosarcoma.

We Connect Now
Connecting & integrating college students with disabilities as a virtual community with particular emphasis on access to higher education and employment.

(Bandon Area Special Children) is a fun club organised by a group of parents of children and adults with intellectual disabilities in the Bandon, Kinsale and surrounding areas.

Non-Epileptic Attacks
Probably the most comprehensive site about NEAD on the internet. This UK site contains lots of information, self-help materials and contacts.

UK charity DIPEx has launched the new website for young people with epilepsy.

About Kids Health
An online resource fom the Hospital for Sick Children, Toronto, to assist people in explaining epilepsy to young children.

Special Needs Family Fun
Special Needs Family Fun offers family fun and special needs resources to enhance fun and quality of family life for families with disabilities.
The comprehensive guide to health for Irish users. Ireland's only live health news and feature service.

Manufacturers of the Vagus Nerve Stimulator. Details of the treatment can be downloaded from their web site.

Tuberous Sclerosis Complex Ireland(TSC)

Support group for parents' families and individuals with TSC, to raise the profile of the condition and to keep abreast with all relevant medical advances relevant to the condition.

Organisation for Anti-Convulsive Syndrome

OACS is a charity and support group for those children born with Fetal Anti Convulsant Syndrome and the families that love and care for them.

Head Trauma & Epilepsy

Web article on head trauma and the development of epilepsy.

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